Boomer Esiason Foundation Feeds

Sean Bourgeois- College Life and Compliance

Mon, 06 Oct 2008 04:20:00 -0700

http://www.youtube.com/watch?v=_uXeE84zPWA

Flying Pigs in Cincinnati!!!

Wed, 30 Apr 2008 04:25:00 -0700

Good luck to Nicole, Linda, Bryan and Keith as they represent Team Boomer in the Flying Pig Marathon in Cincinnati, OH!If you're in the area and want to hop in on the fun, check The Flying Pig Maratho...

Cystic Fibrosis Institute Retreat - Chicago

Tue, 12 Feb 2008 22:23:00 -0800

The Cystic Fibrosis Institute, a not for profit CF organization based in Chicago, is proud to announce its 3rd Annual Winter Education Retreat to be held on February 16, 2008 in Glenview, Illinois jus...

Courtney Ward Runs for Team Boomer

Tue, 13 Nov 2007 00:52:00 -0800

Courtney Ward Runs NYC Marathon for Team Boomer in 4 Hours 56 Minutes

Join Team Boomer

Sun, 21 Oct 2007 13:17:00 -0700

As an athlete living with cystic fibrosis at 51 years old, I know how important exercise is for improving health, especially for those living with CF. Participating in sports and physical activity ha...

Justin Carlson, Transitioning from High School to College – The Next Step to Success.

Tue, 16 Oct 2007 03:50:00 -0700

With the help of today's therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by ...

Scott Johnson Competes in Hawaii Ironman for Team Boomer

Thu, 27 Sep 2007 06:05:00 -0700

Scott Johnson is 35 years old with cystic fibrosis and LIVING, BREATHING, SUCCEEDING as he celebrated 6 years post double lung transplant on September 15th. "Dreams do come true," states Scott, as he...

Abby Tranel Wins 2007 Exercise for Life Scholarship

Tue, 04 Sep 2007 03:20:00 -0700

Abby Tranel from Hampton, Nebraska wins $10,000 scholar-athlete award for people with CF. Abby ran the 1.5 mile run in 10 minutes 19 seconds at Nebraska Wesleyan University's track in Lincoln, Nebrask...

Patrick Robinson wins 2007 Exercise for Life Scholarship

Wed, 29 Aug 2007 00:40:00 -0700

Patrick Robinson from Sandown, NH wins $10,000 scholar-athlete award for people with CF. Mr. Robinson ran the 1.5 mile run in 10 minutes 10 seconds at his former high school Timberlane Regional H.S. i...

We rock!

Tue, 14 Aug 2007 06:38:00 -0700

The CF Podcast was rated 1 for the month of July and I am pleased to announce the Boomer Esiason Foundation awarded 2 transplant grants - thank you for your support. August is here and time to vote ag...

Booming Celebration

The Boomer Esiason Foundation's Thirteenth Annual Booming Celebration - Saturday, March 8, 2008 - New York, New York

BEF Golf Invitational

May 5, 2008 - Glen Oaks Club, Old Westbury, New York

BEF Maryland Golf Classic

May 20, 2008 - The members Club at Four Streams, Beallville, MD

Nebraska Golf Classic

May 31st- June 1st, 2008 - Quarry Oaks Golf Course, Ashland, NE

Boomer's Big Bang: Sporting Clays Pro Am

June 11-12, 2008 - Elk Creek Hunt Club - Owenton, Kentucky

DCU Charity Golf Classic

June 17, 2008 - Wedgewood Pines - Stow, Massachusetts

CVS Charity Classic

June 22-24, 2008 - Rhode Island Country Club - Barrington, RI

Commerce Bank Championship

June 27-29, 2008 - Red Course Eisenhower Park - East Meadow, NY

Samsung's Four Seasons of Hope Annual Dinner

June 16, 2008 - Ciprianis 55 Wall Street - New York City NY

Outback Steakhouse Empire Challenge

June 24, 2008 - Hofstra University James Shuart Stadium - Hempstead, New York - each summer NYC high school football seniors take on their counterparts in Long Island in the Outback Steakhouse Empire Challenge

Rimington Football Camp

July 7-9, 2008, Millard South High School, Omaha, NE - The camp features both a youth and high school offensive line camp

BEF Massachusetts Golf Classic

July 2008 - The Members Club At Four Streams - Beallsville, MD

The All-American Sporting Clays Championship and World FITASC Challenget

July 24-27, 2008 - Elk Creek Hunt Club - Owenton, KY

F.C.A. Montauk Redbone Presented by BEF

September 24-26, 2008 - Stripers-Bluefish-False Albacore - Montauk, NY

Rimington Trophy

January 17, 2008 - Rococo Theater, Lincoln, NE - Presented annually to the outstanding offensive center in college football

Alabama Begins Screening Newborns for CF

Alabama has joined 39 other states and the District of Columbia in screening all newborns for cystic fibrosis at birth. Screening gets underway this month.

Voluntary Recall of Mouthwash Distributed Nationwide by Cardinal Health

Hydrox Labs has issued a voluntary recall of Cardinal Health labeled alcohol-free mouthwash. The mouthwash has been tested and been found positive for Burkholderia cepacia (B. cepacia). The Centers for Disease Control has confirmed hospital illnesses in one state associated with the use of the affected mouthwash.

Genetic Non-Discrimination Act and Newborn Screening Laws Pass Congress

The Cystic Fibrosis Foundation praised the passage of two important pieces of legislation. One law protects those with CF from discrimination based on their genetic disease. The other new bill helps diagnose cystic fibrosis at the earliest stages.

Lewis Gibson, Cystic Fibrosis Expert, Dies at 80

Dr. Lewis E. Gibson, a pediatrician and researcher who developed a safe, highly reliable method to test children for cystic fibrosis, and later helped refine treatments for it, died on April 15 in Sturgeon Bay, Wis. He was 80.

May Declared National Cystic Fibrosis Awareness Month

The Cystic Fibrosis Foundation praised the U.S. Senate for officially recognizing May as National Cystic Fibrosis Awareness Month and encouraging public awareness and understanding of CF.

Cystic fibrosis Screenings Give Babies Hope

Early detection allows doctors to treat disease quickly. Lucky for Southwest Florida, a goal of Dr. Luis Faverio coincided with a new state requirement for newborn disease screening.

Cystic Fibrosis Foundation Lauds Congress for Passage of Small Business Innovation Research Program

The Cystic Fibrosis Foundation today lauded the U.S. House of Representatives for passing legislation to reauthorize the Small Business Innovation Research (SBIR) program.

Three New States Join Efforts to Screen Newborns for Cystic Fibrosis

Illinois and Vermont have joined 37 other states and the District of Columbia in requiring that all newborns be screened for cystic fibrosis at birth.

FoldRx and Cystic Fibrosis Foundation Therapeutics Announce $22 Million Collaboration

FoldRx Pharmaceuticals, Inc. (FoldRx) and Cystic Fibrosis Foundation Therapeutics, Inc. (CFFT), the nonprofit affiliate of the Cystic Fibrosis Foundation, announced today that FoldRx will receive up to $22 million over five years to discover and develop new compounds aimed at treating a core defect in cystic fibrosis.

Boomer Esiason Foundation Partners with Redbone in F.C.A. Montauk Slam Celebrity Fishing Tournament on Long Island July 29, 2007

MONTAUK, Long Island, NY— The Boomer Esiason Foundation (BEF) will partner with the Redbone for the sixth annual F.C.A. Montauk Slam, a national celebrity fishing event to raise funds and awareness for cystic fibrosis, at the Montauk Yacht Club Resort and Marina, Sept. 19 – 21.

Gilead Presents Positive Data for New Cystic Fibrosis Drug

Gilead Sciences announced that its Phase III AIR-CF1 study of aztreonam lysine for inhalation for the treatment of people with cystic fibrosis who have pulmonary Pseudomonas aeruginosa met its primary efficacy endpoint of change at 28 days.

BEF Launchs Exercise For Life Scholarship This May To Celebrate CF Awareness Month

May is National Cystic Fibrosis Awareness Month. During this time we have the opportunity to bring awareness and hope to people living with cystic fibrosis (CF), along with their families, friends, and the general public.

Cystic Fibrosis Treatment Hope Emerges

University of Pennsylvania Medical School researchers have discovered that a bacterial enzyme may play a role in lung damage in cystic-fibrosis patients, a finding that eventually could lead to a new treatment.

Superpill PTC124 Could Potentially Cure 2,000 Diseases

Researchers in the United States have developed a mind-blowing new pill, known as PTC124, that could one day treat nearly 2,000 inherited diseases, including muscular dystrophy and cystic fibrosis. Even better yet, scientists believe that this new "superpill" could be available within just three years.

Newly Discovered Immune Defense May Be Impaired In CF Airways

A recent University of Iowa study reveals a new immune defense mechanism in normal airways and may help explain why people with cystic fibrosis (CF) are particularly susceptible to bacterial lung infections. The findings also may point the way to new approaches for treating the disease.

Data From Comprehensive Analysis Shows Pulmozyme Slows Decline of Lung Function

The abstract, titled Pulmozyme (dornase alfa) Use is Associated with a Slower Rate of Lung Function Decline in Patients with Cystic Fibrosis, was presented on November 3, 2006 at the North America Cystic Fibrosis Conference (NACFC) in Denver, Colorado. The author of the study is Dr. Michael Konstan, M.D., Director of LeRoy W. Matthews Cystic Fibrosis Center at Rainbow Babies and Children's Hospital, Cleveland, Ohio.

Predix Pharmaceuticals Announces Expansion of Research Collaboration with Cystic Fibrosis Foundation Therapeutics

Predix Pharmaceuticals Announces Expansion of Research Collaboration with Cystic Fibrosis Foundation Therapeutics Predix to Receive $1.5 Million Milestone Payment; Total Potential Value of Agreement Increased to $16 Million

INSPIRE Initiates Phase 3 Clinical Trial of Denufosol Tetrasodium in Cystic Fibrosis Patients

DURHAM, NC - July 27, 2006 - Inspire Pharmaceuticals, Inc. (NASDAQ: ISPH) announced today the initiation of a Phase 3 clinical trial to evaluate its drug candidate, denufosol tetrasodium Inhalation Solution, in patients with mild cystic fibrosis (CF) lung disease.

Johns Hopkins Lab Scientists Tame Overactive Cystic Fibrosis Protein;

A team led by Johns Hopkins Childrens Center scientists has identified and successfully tamed an overactive protein that plays a key role in cystic fibrosis (CF), a genetic disorder that interferes with the bodys ability to transport chloride in and out of cells.

CYSTIC FIBROSIS; Fat Malabsorption in Cystic Fibrosis Patients May Be Due To Abnormal Intracellular Lipid Processing

Abnormal intracellular lipid processing involving apolipoproteins may contribute to fat malabsorption in cystic fibrosis (CF) patients.

New Statistics Show CF Patients Living Longer

The median age of survival for cystic fibrosis (CF) patients has risen to 36.8 years, up from the previous years figure of 35.1 years, according to new data released by the Cystic Fibrosis Foundation.

Patient Advocacy Web Cast Offers Up Valuable and Practical Advice

Getting coverage for healthcare and medications, as well as knowing your legal rights can be an uphill battle for many people with cystic fibrosis (CF). The more information patients and families have at hand the better equipped they will be. Experts from the CF community joined forces on March 28 to present a live Web cast about how patients can best navigate the world of health insurance and legal rights. The Web castâ€”hosted by the Cystic Fibrosis Foundation and broadcasted from Houstonâ€”drew 922 participants. For more information go to http://www.multicastmedia.com/cff.htm

Mobile Edge Joins Fight Against Cystic Fibrosis

Anaheim, CA - April 6, 2006 -- Mobile Edge, the premiere designer of innovative and stylish notebook computer carrying cases and accessories, is proud to announce its partnership with the Foundation to help raise funds for research and awareness of cystic fibrosis. Today, Mobile Edge introduces the G-Pak, named after Gunnar Esiason, Boomer's son, and will donate 10 percent of the retail sales of the G-Pak to BEF.

Novartis Boosts Bid for Chiron

Chiron Corp. of Emeryville, Calif., said Monday, April 3, that Swiss drugmaker Novartis AG had increased its bid for the 56% of the company it does not already own from $45 per share in cash to $48 per share, or about $5.4 billion.

Cystic fibrosis: hope remains for a 'miracle cure'

After the first failure of gene therapy. It's widely accepted that treatment leading to a cure for the 50,000 cystic fibrosis sufferers worldwide is an unachievable goal. The limited Research and Devlopment efforts are instead directed towards disease modification and symptomatic treatments with ion channel modulators thought to hold some promise for the future.

Cystic Fibrosis Research May Benefit from New Sensing Tool

Description: Researchers are using an innovative, multi-functional sensing tool to investigate adenosine triposphate (ATP) release and its role in cystic fibrosis. The ATP study marks the first application of a novel sensing system developed by the Georgia Institute of Technology.

Inhaled Hypertonic Saline is Safe and Effective Additional Therapy for Cystic Fibrosis Patients

Inhaled hypertonic saline is safe and effective additional therapy for cystic fibrosis patients. According to a study from Australia, Inhaled hypertonic saline acutely increases mucociliary clearance and, in short-term trials, improves lung function in people with cystic fibrosis. We tested the safety and efficacy of inhaled hypertonic saline in a long-term trial.

University Of Manchester; Recent Studies Add New Data to Cystic Fibrosis Research

Investigators in the United Kingdom, United States and Canada have published new cystic fibrosis data. A study from England has detailed the crystallographic and single-particle analyses of native and nucleotide-bound forms of the cystic fibrosis transmembrane conductance regulator (CFTR) protein.

DNA-Focused Diagnostics Company To Supply Children's Hospital With Genetic Test Reagents

Tm Bioscience Corporation (TMC), a commercial genetic testing company, announced it has signed an agreement to supply the Montreal Children's Hospital of the McGill University Health Centre, Montreal, Quebec, with Tag-It reagents for use in its cystic fibrosis (CF) testing program.

Inserm U724

According to recently published research from France, cationic lipid mediated gene transfer inhibits tumor necrosis factor (TNF)-alpha and interkeukin-4 (IL-4) in cystic fibrosis (CF) tracheal gland cells.

Financial Services Company Extends Commitment To Underwrite Children's Health Organization Events

Foresters announces it will continue support of Children's Miracle Network Radiothon program by renewing its long-standing commitment through 2009 and providing $6 million in funding to underwrite the costs of the international program.

Electromed Offers New Model Airway Clearance System

Electromed has introduced its next-generation SmartVest Trimline model airway clearance system in the US, with commercial shipments expected to start in April 2006. Prescribed by a physician, the SmartVest is a personal high frequency chest wall oscillation device that enables patients to take charge of their own therapy, without help from family or other caregivers. The SmartVest uses automated chest and back compression (HFCWO) to provide a more consistent treatment experience for the patient.

Electromed Inc. Announces New SmartVest Trimline Model Airway Clearance System

An Attractive Option for Patients with Cystic Fibrosis, Bronchiectasis, Obstructive Pulmonary Conditions and Other Diseases Presenting Excess Secretions Most people do not think about taking their next breath; it happens as easily and naturally as blinking an eye. But for individuals with cystic fibrosis, bronchiectasis, chronic obstructive pulmonary conditions, or diseases such as multiple sclerosis and muscular dystrophy, the ability to breathe is a life and death matter.

Maze Of Cystic Fibrosis Is Getting A Little Clearer

When Chip Hawkins was born, the prognosis for patients with cystic fibrosis was bleak. Most died as children. Hawkins, now 38, shows how far patients with the rare genetic disease have come, experts say, and how their quality of life may improve even more.

Keeping Kid's Mind Off Ailment is Child's Play

Kamia Bainbridge sat in her hospital room Wednesday, thinking of ways to keep busy. A borrowed laptop sat a few feet away, and craft activities were piled on the floor."I play video games when I'm bored," Kamia said, taking the feeding tube cord that snaked out of her left nostril and tucking part of it behind her ear. Boredom has been a problem for the petite 12-year-old since she had a liver and small bowel transplant about two months ago. But the girl with reddishbrown hair and a dimpled smile gets about 30 minutes of game-play each day in her room at the Nebraska Medical Center, thanks in part to donations from the video game community.

Tm Bioscience Ranked Number 60 Fastest Growing Technology Company in North America on the 2005 Deloitte Technology Fast 500

Tm Bioscience Corporation (Toronto, Ontario; TSX: TMC), a leader in the commercial genetic testing market, today announced that it ranked Number 60 on the 2005 Deloitte Technology Fast 500, a ranking of the 500 fastest growing technology companies in North America. Rankings are based on percentage revenue growth over five years, from 2000-2004.

Oriel Therapeutics Inc - Expands Its Patent Portfolio

Oriel Therapeutics, an emerging inhaled drug delivery company based in Research Triangle Park, announced today that inventions central to its dry powder inhaler technology have been granted a United States Patent (No. US 6,971,383 issue date Dec 6th, 2005) for dry powder inhaler packages, control systems and dispersion methods.

New Wave Lung Treatment

An observation among Australian surfers with cystic fibrosis that they felt better after riding the waves has inspired a promising new treatment for the incurable disease. Respiratory physician Peter Bye combined the experience of his surfer patients at Sydney's Royal Prince Alfred Hospital with his own scientific knowledge to develop a cheap, natural therapy based on inhaled salt water..

Bronchitol Cystic Fibrosis Study Begins

Pharmaxis has reported that a Phase II clinical trial in patients with cystic fibrosis has dosed its first patients. The study is designed to determine the optimal dose of the mucus-clearing agent Bronchitol, and is being conducted in seven hospitals throughout Canada.

Philip Morris Works on New Type of Inhaler

Philip Morris (PM) (USA), tobacco firm, is working on a new type of hand inhaler to treat a number of diseases including lungs affected by smoking. The project is titled Aria and it is a result of PM's unsuccessful efforts to invent a safer alternative to cigarettes.

Johnsonville Brats Bring a Thrill to the Grill and Grins to Game Faces; Game Within the Game: The Making of a Great Tailgate Johnsonville Sausage

Sept. 19, 2005--For many Americans, the summer backyard barbecue is just training camp for the real thing, tailgating season. Like the stalwarts of the offensive line, veteran tailgaters hone their skills by testing and tweaking recipes throughout the summer to prepare for the opening game.

Cystic Fibrosis Foundation Makes Medications Available to All CF Patients Affected by Hurricane Katrina

Bethesda, Md.; September 2, 2005 The Cystic Fibrosis Foundation will make cystic fibrosis (CF) medications available to all patients affected by Hurricane Katrina regardless of their ability to pay, the organization announced today.

FDA Announces Nationwide Recall of Medline Brand of Alcohol-free Mouthwash and Hygiene Kits

M2 PRESSWIRE-AUGUST 30, 2005-US FDA: FDA announces nationwide recall of Medline brand of alcohol-free mouthwash and hygiene kits containing mouthwash because of possible health risk 1994-2005 M2 COMMUNICATIONS LTD

Altus Pharmaceuticals Announces Positive Results of Phase II Trial

Altus(R) Pharmaceuticals Inc. announced today that it has successfully completed a Phase II clinical trial of TheraCLEC(TM) in cystic fibrosis (CF) patients with malabsorption due to pancreatic insufficiency. Altus' Phase II study is the largest prospective, randomized, double blind trial ever conducted to evaluate the safety and efficacy of enzyme replacement therapy in the treatment of patients with pancreatic insufficiency. TheraCLEC was well tolerated by patients and the trial achieved its primary efficacy endpoint, a statistically significant improvement in fat absorption. Altus, a leader in the development of novel protein therapies to treat chronic gastrointestinal and metabolic diseases, plans to release the full Phase II results in October 2005 at the North American Cystic Fibrosis Conference in Baltimore, MD.

Growth Hormone Therapy Safe and Effective for Adolescent Patients

Growth hormone (GH) therapy is safe and effective for adolescent cystic fibrosis (CF) patients.Endocrinologists in the United States conducted a "retrospective evaluation of data from 25 pubertal adolescents (ages 13 years 4 months to 16 years 11 months, Tanner stage III or IV)."

Criteria for Screening for Diabetes in Cystic Fibrosis Released

Researchers report new criteria for impaired fasting glucose and screening for diabetes in cystic fibrosis in a recent issue of the European Respiratory Journal.

Nasal Polyps Examined, Role in Cystic Fibrosis Differentiation Indicated

According to recent research from Belgium, nasal polyps (NP) in patients with and without cystic fibrosis (CF) reveal a differentiation by innate markers and inflammatory mediators.

U.S. FDA Clears Cystic Fibrosis DNA Test for Diagnostic Use in the U.S.

Tm Bioscience Corporation (TMC), a company in the commercial genetic testing market, announced that its Tag-It Cystic Fibrosis (CF) Kit, a multiplexed human disease genotyping test, has been cleared by the U.S. Food and Drug Administration (FDA) as an in vitro device (IVD) for diagnostic use in the U.S.

Tm Bioscience receives FDA clearance for Cystic Fibrosis DNA Test

Tm Bioscience Corporation (Toronto, Ontario; TSX: TMC), a leader in the commercial genetic testing market, is pleased to announce that its Tag-It(TM) Cystic Fibrosis (CF) Kit is the first multiplexed human disease genotyping test to be cleared by the U.S. Food and Drug Administration (FDA) as an in vitro device (IVD) for diagnostic use in the United States.

National CF Awareness Month!

The Cystic Fibrosis Foundation has designated May 2005 as National Cystic Fibrosis Awareness Month to place a national spotlight on cystic fibrosis (CF) and the importance of supporting CF research and medical programs.

PTC THERAPEUTICS, INC

Drug PTC124 granted fast track designation from the U.S. Food and Drug Administration (FDA)

Genaera Receives Regulatory Authorization for a Pivotal Phase II Trial

Genaera Corporation (NASDAQ:GENR) and Cystic Fibrosis Foundation Therapeutics (CFFT) today announced the receipt of regulatory authorization from the Irish Medicines Board to begin a pivotal Phase II clinical trial for the mucoregulator drug, LOMUCIN(TM), in people with cystic fibrosis (CF)

Cystic Fibrosis Foundation Therapeutics and Galapagos Initiate Alliance to Discover Drug Targets

Cystic Fibrosis Foundation Therapeutics and Galapagos Initiate Alliance to Discover Drug Targets 04/18/2005 - Cystic Fibrosis Foundation Therapeutics, Inc. (CFFT), and Galapagos have initiated a two-year target discovery alliance.

Gene-corrected Stem Cells Can Help Patients With Cystic Fibrosis

Gene-corrected stem cells can help patients with cystic fibrosis."Cystic fibrosis (CF), the most prevalent, fatal genetic disorder in the Caucasian population, is caused by mutations of CF transmembrane conductance regulator (CFTR). The mutations of this chloride channel alter the transport of chloride and associated liquid and thereby impair lung defenses. Patients typically succumb to chronic bacterial infections and respiratory failure,"investigators in the United States report.

Cystic Fibrosis Foundation Therapeutics and Predix Pharmaceuticals Announce Drug Discovery Collaboration to Treat Cystic Fibrosis

Predix Pharmaceuticals Holdings Inc., a drug discovery and development company, and Cystic Fibrosis Foundation Therapeutics, Inc. (CFFT), the drug discovery and development affiliate of the Cystic Fibrosis Foundation, announced today that they have signed a research, development and commercialization agreement. The company will receive up to $12.5 million in milestone driven funds over the next three years through a therapeutics development award from CFFT for two programs.

Managing CF

* How is cystic fibrosis best diagnosed in practice? * Which antibiotics should the GP prescribe for chest infections? * What are the metabolic consequences of CF? J STUART ELBORN MD, FRCP Professor of Respiratory Medicine, Queen's University of Belfast, and Consultant Physician, Belfast City Hospital. Professor Elborn is also Chairman of the Research and Medical Advisory Committee of the Cystic Fibrosis Trust.

Once-daily Drug Offers Simpler Home Treatment, Fewer Side Effects for Children

Nottingham researchers have found a way to treat children with cystic fibrosis (CF), which could reduce their side effects and see more young patients treated at home. Experts at the University of Nottingham organized the largest successful clinical trial in the U.K. looking at cystic fibrosis in an attempt to discover whether a common antibiotic used to treat the condition could be administered just once a day instead of the usual three daily doses.

PTC THERAPEUTICS, INC

PTC Therapeutics, Inc., (PTC) announced that the company has been granted fast track designation from the U.S. Food and Drug Administration (FDA) for the development of its novel drug, PTC124, for the treatment of cystic fibrosis (CF).

BEF Archived Cystic Fibrosis News

Archived Cystic Fibrosis News

Episode #0085 Casey Flaherty â Nutrition and CF

podcast@esiason.org — Thu, 29 Oct 2009 15:37:00 -0700

Episode #0085 Casey Flaherty Ã¢ Nutrition and CF

Casey Flaherty, 25 years old with cystic fibrosis, living in New York City and running the ING New York City Marathon. Casey is working, attending nursing school, taking yoga classes and living, breathing, and succeeding with CF.

-   Casey eats a high calorie well rounded diet consisting of fruits, nuts, vegetables, dairy for calcium, and lots of carbohydrates & protein,

-   Ã¢Besides being adherent to my treatments I believe in good nutrition, exercise, and rest. I try to get 8 hours of sleep every nightÃ¢ states Casey.

-   Casey loves junk foods like baked goods and pizza but tries to stay away from foods high in corn syrup and processed goodies.

-   Ã¢I am always eating throughout the day so I make sure I pack my bag with fruit and trail mixÃ¢ states Casey.

-   CaseyÃ¢s little secret on nutrition and CF is that she eats a lot of peanut butter and cheese as a snack because if itÃ¢s nutritional value.

-   Ã¢CF is part of my life and I just deal with itÃ¢ everyone has somethingÃ¢ states Casey.

-   CaseyÃ¢s recommendations to others with CF, Ã¢Be adherent to your medications, have a well balanced diet, rest, and communicate with your doctorÃ¢.

-   Casey believes, Ã¢The more you put into your health, the more you will get out of it!Ã¢

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 7th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0084: Remembering Brian - A Wonderful Husband and Loving Father - Windows Version

Tue, 13 Oct 2009 17:49:00 -0700

Episode #0084: Remembering Brian - A Wonderful Husband and Loving Father

The Gerofsky family (Debbie, Evin, and Alex), the wife and sons of the late Brian Gerofsky share their heartfelt feelings about Brian. Debbie and her sons talk about living with CF in the family unit and share their fond memories of Brian.

-   Debbie was married to Brian for 26 years and has 2 wonderful sons Evin (22 years old) and Alex (19 years old)

-   Ã¢Brian was funny, loving, smart, passionate, and to know him was to love himÃ¢, states Debbie. Brian always called Debbie his soul mate and his song for her was Van MorrisonÃ¢s Brown Eyed Girl.Ã¢

-   Brian was very private, independent and compliant with his CF care, as he did not want to burden his family. Ã¢We lived our life around BrianÃ¢s CF and did not let it stop us from LIVING!Ã¢ states Debbie.

-   The Gerofsky family did a lot together and enjoyed the beach, museums, music, dance, and Broadway shows. The family meant everything to Brian and he believed in hard work and LIVE YOUR LIFE!

-   Debbie, Evin, and Alex believe that the most important thing in a family dealing with CF is; Ã¢open communication and to respect each others feelingsÃ¢Ã¢

-   Evin and Alex admired their dadÃ¢s strength and the fact that he was always there for them.

-   Ã¢If my dad was here right now I would like to tell him THANK YOU and I love you very muchÃ¢ states Evin and Alex.

-   Brian passed away from cystic fibrosis in May 2009 at age 57.

-   Although Brian is gone his memories live onÃ¢

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 6th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0084: Remembering Brian - A Wonderful Husband and Loving Father

podcast@esiason.org — Tue, 13 Oct 2009 12:28:00 -0700

Episode #0083 Kevin McCrea â Exercise for Clear Lungs

podcast@esiason.org — Wed, 23 Sep 2009 16:05:00 -0700

Title: Episode #0083 Kevin McCrea Ã¢ Exercise for Clear Lungs

Kevin McCrea, 18 years old with cystic fibrosis, living Washington and loving life. Kevin is involved in many sports, and enjoys spending time with family and friends. Attending Washington State University, Kevin believes in Ã¢shaking up the lungs and clearing them outÃ¢ through vigorous sports.

-   Kevin was diagnosed at age two and grew up in a small town in the Northwest. Living in the country Kevin enjoys swimming, hiking, fishing, and riding dirt bikes.

-   Ã¢In high school I was actively involved in team sports including track & field (4 years), basketball (2 years), and football (1 year). Sports was a social event and has made a major impact on my healthÃ¢ states Kevin.

-   KevinÃ¢s training in basketball and track & field was 2 hours 6 days/week and the running and jumping makes him cough and clear out his lungs.

-   Kevin on being compliant: Ã¢I believe in staying compliant and doing all my treatments, including exercise, so I can stay healthy and live a long lifeÃ¢.

-   The biggest challenge that Kevin faces with CF is time management of all the treatments.

-   Ã¢CF is not a big deal to meÃ¢ I was born with it, live with it, and it will not stop meÃ¢, believes Kevin.

-   KevinÃ¢s advice to other teens with CF; Ã¢Push forward an never give up Ã¢ be active and go for it!Ã¢

-   Ã¢Step it up! Get out there and live and do not alienate yourselfÃ¢, PatrickÃ¢s advice to others with CF thinking about college.

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 5th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0082 Philip Stevanovic â CF Related Diabetes (CFRD)

podcast@esiason.org — Thu, 03 Sep 2009 12:09:00 -0700

Episode #0082 Philip Stevanovic Ã¢ CF Related Diabetes (CFRD)

Philip Stevanovic, 36 years old with cystic fibrosis and diabetes, living in New York, married with twin boys, works full time as a construction manager, and received a double lung transplant in August 2007 at New York Presbyterian/Columbia University Medical Center in New York City

-   Philip was diagnosed at age 2 at the University of Minnesota.
-   Ã¢Growing up with CF was pretty uneventful except that I slept in a mist tent. I played soccer, tennis, football and lived in Africa, Middle East, and Yugoslavia,Ã¢ states Phil.
-   Philip was diagnosed with CFRD in 2006 via glucose tolerance test. Ã¢I kept getting repeat infections because I had high blood sugar and bacteria feeds on sugar,Ã¢ according to Phil.
-   Ã¢I treat my CFRD with insulin shots before I eat and that controls the sugar at meals. Blood sugars are controlled by food, medication, and exercise,Ã¢ states Phil.
-   Ã¢Since I started insulin treatment for my CFRD I have gained weight, which is something I could never do with CF,Ã¢ states Phil.
-   Philip sees an Endocrinologist for his CFRD.
-   Ã¢My role models are my mother and father Ã¢ they are responsible for making me the person I am today and I thank them for everything.Ã¢
-   PhilipÃ¢s recommendation to other with CFRD; Ã¢Enjoy life, be happy, stay focused, and get an Endocrinologist familiar with CF.Ã¢

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 4th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0081 Patrick Newman â Gearing Up for College with CF

podcast@esiason.org — Tue, 04 Aug 2009 14:13:00 -0700

Title: Patrick Newman Ã¢ Gearing Up for College with CF

Patrick Newman, 18 years old with cystic fibrosis, living in Missouri. Patrick is playing sports, enjoying friends and family, and gearing up for college. Attending University of Missouri in the fall, Patrick is looking forward to being independent and taking responsibility for his health care.

-   Patrick works hard at staying healthy with all his treatments to manage his CF. Ã¢I know that those few tiny moments I spend doing my treatments could add years onto my lifeÃ¢, states Patrick.
-   Ã¢I grew up in a healthy environment active in soccer, baseball, and golf. I also learned, at an early age, to take responsibility for myself Ã¢, states Patrick.
-   Patrick is looking forward to going away to college to experience higher education, socializing, and being Ã¢my own bossÃ¢.
-   Ã¢I am very lucky to have my family and friends as a great support system and I will be rooming with my best friend at college Ã¢ itÃ¢s all about partnershipÃ¢, states Patrick.
-   The biggest challenge that Patrick faces with CF is time management.
-   Patrick will be majoring in biology, wants to attend medical school, and hopes to study abroad for one semester.
-   Patrick on being compliantÃ¢ Ã¢You do not want to play catch-up with your therapies so just do it - I do it because I want to live and enjoy life!Ã¢
-   Ã¢Step it up! Get out there and live and do not alienate yourselfÃ¢, PatrickÃ¢s advice to others with CF thinking about college.

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 3rd in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0080 Victor Roggli â Succeeding in the Career World with CF

podcast@esiason.org — Tue, 21 Jul 2009 13:52:00 -0700

Title: Victor Roggli Ã¢ Succeeding in the Career World with CF
Victor Roggli, 58 years old with cystic fibrosis, living in North Carolina, married with a family, and working full time in the medical research field. Victor, a professor of pathology, focusing on lungs, spends his workday teaching, doing research, and consulting. Victor is LIVING BREATHING SUCCEEDING with CF, the career world, and life!
-   Victor was born in Winchester, Tennessee on a farm and was diagnosed at 12 years of age.
-   Ã¢Growing up I was always very active playing touch football, softball, and basketball. I am very thankful to my parents for letting me play sports and be a real boyÃ¢ states Victor.
-   Victor attended Rice University where he majored in Bio Chemistry and then attended medical school at Baylor in Houston, Texas.
-   Ã¢If I had a chance to do something differently when I was growing up with CF I would have been more open about my CF and not put up so many wallsÃ¢Ã¢ states Victor.
-   Victor now believes in being open about his CF and does his aerosol therapies at work. Ã¢With the American Disabilities Act people cannot discriminateÃ¢
-   Ã¢Know your limitations with CF and be realistic in what you do in the career world,Ã¢ states Victor.
-   Victor loves singing in the shower and has become a BIG fan of karaoke at least twice a week.
-   VictorÃ¢s advice to others with CF; Ã¢Do not adopt to CF, let it adopt to youÃ¢Ã¢
This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 2nd in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0079 Chad Brown Believes in Laps for Life with Cystic Fibrosis- iPhone Version

podcast@esiason.org — Fri, 01 May 2009 07:27:00 -0700

Title: Chad Brown Believes in Laps for Life with Cystic Fibrosis

Chad Brown, 27 years old with cystic fibrosis, living in Seattle Washington, took his FEV1Ã¢s from 29% to 58% through the power of swimming. Chad was listed for a double lung transplant and now he is getting his college degree, working to support himself, and exercising for life! Chad moved from Memphis to Seattle a few years ago and with a new CF team and new therapy and exercise discipline, is LIVING BREATHING SUCCEEDING LIVING on a daily basis.

- Chad was born in Tennessee and diagnosed at birth.

- Ã¢Growing up I was always treated very differently and in many ways babiedÃ¢ This temporarily helped me cope with the disease but eventually it took a negative toll on me,Ã¢ states Chad.

- Insurance issues forced Chad to move to the state of Washington. Ã¢Washington has a user friendly state insurance program for people like myself with cystic fibrosis.Ã¢

- Ã¢For me, along with my therapies, swimming has kept me alive and healthy. When I first started swimming I could barely swim a lap. I now swim 45 minutes - 5 days a week!Ã¢ states Chad.

- Chad is pursuing a college degree in engineering, working over 30 hours a week to support himself, involved in a great relationship and looking forward to marriage and starting a family. Ã¢Life is goodÃ¢Ã¢

- ChadÃ¢s advice to others with CF; Ã¢No matter what NEVER give up. ItÃ¢s your life and you only have one so take charge and care of yourself!Ã¢

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 1st in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0079 Chad Brown Believes in Laps for Life with Cystic Fibrosis

podcast@esiason.org — Thu, 30 Apr 2009 12:32:00 -0700

Episode #0078 CF Travel Tips - Isabel Stenzel Byrnes

podcast@esiason.org — Mon, 30 Mar 2009 16:32:00 -0700

Title: Episode #0078 CF Travel Tips - Isabel Stenzel Byrnes

Isabel Stenzel Byrnes, 37 years old with cystic fibrosis living in Northern California, a wanderlust, and post transplant 5 years, and co-author with her sister Anabel of the book The Power of Two (www.stenzeltwins.com). Isabel has worked as a social worker and health educator and is LIVING BREATHING SUCCEEDING on a daily basis.
Isabel, along with her twin sister Anabel and family, has traveled the world visiting 12 foreign countries and 41 states in the USA. Isabel started traveling at age 8 and has also lived in Japan for one year.
- Isabel was born in Southern California, diagnosed at birth, and had an active childhood loving the outdoors and such sports as swimming, jogging, and hiking.
- Isabel graduated college from the Stanford University, competes in the Transplant Games, and most recently started playing the Ã¢bagpipes.Ã¢
- Ã¢When traveling I make sure I have the CF doctor contact info in the city I am traveling to, take extra prescriptions, wash hands a lot, drink lots of water, and ALWAYS carry-on my medicationsÃ¢ states Isabel.
- Post transplant Isabel continues to travel and has added a mask during airplane travel.
- Ã¢I have lived a very privileged life and CF had taught me to be very disciplined and everyone with CF is a mentor to me,Ã¢ states Isabel.
- IsabelÃ¢s advice; Ã¢Do not limit yourself and allow yourself to dreamÃ¢Ã¢

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the final of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

The Power of Two
By Isabel Stenzel Byrnes, Anabel Stenzel

"Born in 1972, twins who share this life-threatening disease give an honest portrayal of their struggle to live normal lives, their interdependence, day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival"--Provided by publisher.

More details

The Power of Two: A Twin Triumph Over Cystic Fibrosis

By Isabel Stenzel Byrnes, Anabel Stenzel

Edition: illustrated

Published by University of Missouri Press, 2007

ISBN 0826217540, 9780826217547

280 pages

The Power of Two - To Order Click Here

Episode #0077 Julie Desch - Nutrition and CF

podcast@esiason.org — Wed, 11 Mar 2009 11:39:00 -0700

Title: Episode #0077 Julie Desch - Nutrition and CF
Julie Desch, 48 years old with cystic fibrosis living in Northern California, single mom with 2 fabulous children and works from home running a non-profit Ã¢ New Day Wellness (www.newdaywell.org), and LIVING BREATHING SUCCEEDING LIVING on a daily basisÃ¢

Julie has realized the benefits of nutrition and exercise and at New Day Wellness Julie coachÃ¢s nutrition, fitness, stress management, and disease management to people with chronic illness Ã¢ many with CF.
- Julie was born in Nebraska, diagnosed at birth; the youngest of 7 siblings, attended Stanford University, and enjoys golf, running, weight training, and reading.
- Ã¢I enjoy sharing my thoughts on nutrition, wellness, and exercise on my blog: www.sickandhappy.com, this is a great way to get the word out thereÃ¢, states Julie.
- JulieÃ¢s Ã¢junkÃ¢ foods include; pretzels, yogurt, frosted mini wheatÃ¢s dipped in peanut butter.
- Ã¢I am a firm believer in supplements such as fish oil, NAC, and additional vitamins but ALL are with doctors approvalÃ¢, states Julie.
- Shakes and smoothies with protein added are a must have when Julie is not feeling well or needs an extra boost!
- Ã¢Eat early and eat often, and make sure you are eating lots of fruit, vegetables, and protein Ã¢ I eat a lot of the right foodsÃ¢Ã¢ states Julie
- Gaining weightÃ¢ Ã¢Get involved in exercise and especially weight training and eat a lotÃ¢, believes Julie
- JulieÃ¢s advice to othersÃ¢ Ã¢hopeÃ¢ and be compliant and aggressive to keep your lungs clearÃ¢

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 11th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0076 Paul Drury - Giving Back to the CF Community

podcast@esiason.org — Thu, 26 Feb 2009 11:28:00 -0800

Title: Episode #0076 Paul Drury - Giving Back to the CF Community
Paul Drury, 42 years old with cystic fibrosis, happily married, working for the Cystic Fibrosis Foundation (Connecticut Chapter), a mentor to the CF community, post lung and kidney transplant, and LIVING BREATHING SUCCEEDING LIVING on a daily basisÃ¢
24/7 for the CF community is what Paul Drury is all aboutÃ¢ not only does he live with the disease; Paul works for the CFF fundraising and speaking to many people with CF on a daily basis.

- Paul was born in Chicago, diagnosed at age 2 due to Ã¢failure to thriveÃ¢, grew up in Connecticut, attended the University of Connecticut, and is one of six children.
- Ã¢Growing up with CF was a very private matter and I jumped in to the world of CF post transplantÃ¢, states Paul.
- Paul believes; Ã¢Working for the Cystic Fibrosis Foundation letÃ¢s me give back to others and have a major impact on their life by giving them HOPE... and it makes me feel goodÃ¢.
- Paul gives back at the CFF by doing fundraising for a cure, speaking at events to raise awareness, speaks to families and patients on a daily basis; Ã¢ I am like the poster adult for the CF communityÃ¢, states Paul.
- Paul is also an artist and Ã¢gives backÃ¢ by doing paintings (pointillism) for various CF events.
- PaulÃ¢s biggest challenge on a daily basis; Ã¢Staying healthyÃ¢Ã¢
- PaulÃ¢s advice; Ã¢Do your med.Ã¢s, exercise, nutrition, and sometimes laughter is the best medicineÃ¢.

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 10th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0075 Living with CF is All about Teamwork

podcast@esiason.org — Wed, 11 Feb 2009 12:08:00 -0800

Title: Episode #0075 Living with CF is All about Teamwork

Gunnar Esiason, 17 years old with cystic fibrosis (CF), high school senior, actively involved in sports, being compliant, gearing up for college, and a team player in all aspects of his life.
- Gunnar was diagnosed at age 2 and resides in Long Island with his family.
- Ã¢CF has obviously shaped my life but does not get in the way of me being a normal teenager,Ã¢ states Gunnar.
- Gunnar, like being on a football team, has a team of doctors and health care providers to make sure he is on top of his gameÃ¢
- Ã¢My CF team consists of my physician, dietician, nurse, respiratory therapist, social worker, and sometimes specialist in other areas as CF affects other parts of the body,Ã¢ states Gunnar.
- Ã¢Besides my medical team, my family and friends are also a big part of my team and the more they know about me the better they can help and I can win the battle with CF,Ã¢ states Gunnar.
- Gunnar believes that being honest and truthful with your team is the key to succeeding in life and with cystic fibrosis.
- GunnarÃ¢s advice to others with CF Ã¢ Ã¢Always communicate with your CF team. The more info you can give the more your team can help you maintain good health especially as you become more independent and move on to college.Ã¢

This podcast was made possible through and unrestricted educational grant from EURAND to The Boomer Esiason Foundation.

Episode #0074 Pre-Transplant â Gearing Up for New Beginnings

podcast@esiason.org — Fri, 23 Jan 2009 12:52:00 -0800

Title: Episode #0074 Pre-Transplant Ã¢ Gearing Up for New BeginningsÃ¢
Jerry Cahill, 52 years old, Living Breathing Succeeding with cystic fibrosis talks about being listed for a double lung transplant. Exercise has been a key factor in his life to keep his lungs clear and continues to be important pre-transplant.
- Jerry grew up in Brooklyn, NY. Attended the University of Connecticut, competed in track & field specializing in the pole vault, worked in the apparel industry for 26 years, coachÃ¢s track & field, and currently volunteers at the Boomer Esiason Foundation as he awaits a double lung transplant.
- Ã¢Maintaining a positive attitude and being involved with people and events is key as I await the callÃ¢Ã¢ states Jerry
- Ã¢As my disease progresses due to shortness of breath and my quality of life deteriorates it is time to move on to the next step Ã¢ transplantÃ¢Ã¢ Jerry believes.
- Jerry believes that he has been preparing for a transplant his whole life, as it is just another part of the battle with CFÃ¢ Ã¢With CF you always need to be prepared and RE-INVENT yourself!Ã¢
- JerryÃ¢s adviceÃ¢ Ã¢Stay active and involved, have a great TEAM of doctors that you believe in, have a great support team of family & friends, FUNDRAISE, and gear up for NEW BEGINNINGS as the best is yet to comeÃ¢Ã¢

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 9th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0073 Better Living Through Nutrition â Power Up the Body

podcast@esiason.org — Fri, 09 Jan 2009 17:24:00 -0800

Title: Episode #0073 Better Living Through Nutrition Ã¢ Power Up the Body
Gunnar Esiason, 17 years old with cystic fibrosis (CF), high school senior, actively involved in sports, being compliant, and gearing up for college
- Gunnar was diagnosed at age 2 and resides in Long Island with his family.
- Ã¢CF has obviously shaped my life but I am fortunate to have a great family and friendsÃ¢ states Gunnar.
- Gunnar loves to eat and some of his favorite foods include steak, pizza, hamburgers, shrimp, and carrots.
- Ã¢I take my enzymes with snacks and meals so my body can absorb all the nutrients from my foods and help me to gain weight. Also if I donÃ¢t take my enzymes I will get stomach aches and that is very uncomfortableÃ¢ states Gunnar.
- Gunnar keeps his enzymes in a pillbox and always carries them in his pocket or backpack.
- Ã¢I usually try and have 4 meals a day and snacks between meals and make sure that I have a lot of OPTIONS with my food choices. I also make milkshakes to get extra caloriesÃ¢. States Gunnar
- GunnarÃ¢s advice to others with CF on nutritionÃ¢ Ã¢Take your enzymes to help you stay healthy and keep your weight on and be energeticÃ¢.
- Ã¢My long term hopes and dreams are to live a long and full healthy life and play sports till I am 60Ã¢ states Gunnar.

This podcast was made possible through and unrestricted educational grant from EURAND to The Boomer Esiason Foundation.

Episode #0072 Parents âLetting Goâ as Their Child Becomes Independent with CF

podcast@esiason.org — Mon, 29 Dec 2008 13:09:00 -0800

Title: Episode #0072 Parents Ã¢Letting GoÃ¢ as Their Child Becomes Independent with CF
Donna Dorsett, Mom with beautiful daughter with CF shares her feelings on Ã¢letting goÃ¢ as her daughter becomes more independent attending college away from home. As a parent you never let goÃ¢ you let go physically but not emotionally.
- Donna has 4 children (one with CF), divorced and living in New Jersey.
- Ã¢Our family is very close and we do a lot together Ã¢ family is extremely importantÃ¢ states Donna.
- Kristyn, her daughter, was diagnosed at 18 months and is now attending the University of Scranton.
- When dealing with the ups and downs of cystic fibrosis Donna gets her strength from family.
- Ã¢I never limit my daughter due to CF or treat my daughter as being sickÃ¢ states Donna, Ã¢Kristyn is not sickÃ¢ she gets sickÃ¢Ã¢
- Ã¢My daughter has dreams and goals and therefore I need to let go so she can pursue themÃ¢Ã¢
- DonnaÃ¢s advice, Ã¢Look beyond the diseaseÃ¢ look at your son or daughterÃ¢ CF cannot be #1 and allow them to live the life that you worked so hard at giving themÃ¢

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 8th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0071 Exercise-The Key to Being Compliant on a Daily

podcast@esiason.org — Fri, 12 Dec 2008 14:04:00 -0800

Title: Episode #0071 Exercise-The Key to Being Compliant on a Daily Basis
Gunnar Esiason, 17 years old with cystic fibrosis (CF), high school senior, actively involved in sports, and gearing up for college
- Gunnar was diagnosed at age 2 and resides in Long Island with his family.
- Ã¢Growing up with CF is an added burden but being compliant to my therapy and exercise is the key to Ã¢ states Gunnar Ã¢.
- Currently a senior at Friends Academy, Gunnar is looking at many colleges and universities including: Boston College, Bucknell, and Richmond.
- GunnarÃ¢s favorite sport is hockeyÃ¢ Ã¢I am always moving on the ice and the exercise makes me cough which is a great form of airway clearanceÃ¢, states Gunnar
- Ã¢Exercise, along with my daily medication/therapy routine is KEY to keeping me healthy. I skate 45 minutes a day and have 2 games a weekÃ¢
- Gunnar does not let CF get in the way of him living his life to the fullestÃ¢ Ã¢I do not let CF create obstacles in my life Ã¢ I make sure it does not!Ã¢
- GunnarÃ¢s advice: Ã¢Be active everyday! Cheating on your therapy = cheating on yourselfÃ¢ GET OFF THE COUCH & MOVE!Ã¢

This podcast was made possible through and unrestricted educational grant from EURAND to The Boomer Esiason Foundation.

Episode #0070 Succeeding with CF in the Career World Through Compliance with Cris Dopher

podcast@esiason.org — Fri, 05 Dec 2008 10:41:00 -0800

Title: Episode #0070 Succeeding with CF in the Career World Through Compliance with Cris Dopher
Cris Dopher, 37 years old with cystic fibrosis (CF) is enjoying his career in the Fine Arts as a professional set/lighting and window designer for many shows/department stores including Broadway productions. Adhering to his daily therapies, Cris affords himself the opportunity to enjoy the financial awards of a career, run marathons, and socialize in the game of life despite having cystic fibrosis

- Cris grew up in California and Missouri, was diagnosed at age 4 due to Ã¢failure to thriveÃ¢, and currently resides in New York.
- Cris has always been focused on goals and his first job, at age 16, was typing a book for an author.
- Ã¢As long as I can remember I was out there in the working worldÃ¢ I worked at MacDonaldÃ¢s, was a receptionist for student housing in college, and worked in tent theatre at college for hands on experienceÃ¢, states Cris
- Cris has 2 bachelors degrees and 2 masterÃ¢s degrees that include a Masters of Fine Arts from New York University.
- The biggest challenge Cris faces with CF on a daily basis is TIME MANAGEMENT but, according to Cris, Ã¢itÃ¢s all worth it!Ã¢
- Ã¢CF is background noise and it does NOT get in my way of living and enjoying my lifeÃ¢ states Cris.
- Cris recently ran the ING New York City Marathon in 5 hours and 50 minutes and exercises 5 days/week.
- CBS Evening News recently did a piece on Cris: http://www.cbsnews.com/stories/2008/11/18/eveningnews/main4615319.shtml
- CrisÃ¢ formula for success: Compliance = Success. Be rigorous about your therapies Ã¢ without your health you cannot be a good worker and enjoy life!

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 7th in a series of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0069 Gearing up for College with Gunnar Esiason

podcast@esiason.org — Tue, 11 Nov 2008 10:01:00 -0800

Title: Episode #00689 Gearing up for College with Gunnar Esiason
Gunnar Esiason, 17 years old with cystic fibrosis (CF), high school senior, playing football and hockey, staying compliant, and spending long hours on college applications as he gets ready to move onward and upward.
- Gunnar was diagnosed at age 2 and resides in Long Island with his family.
- Currently a senior at Friends Academy, Gunnar is looking at many colleges and universities including: Boston College, Bucknell, and Richmond.
- Ã¢Being compliant is the key to living the life I want to live Ã¢ states Gunnar Ã¢I like to be involved with family and friends and always doing somethingÃ¢.
- Ã¢The hardest thing about growing up with CF is the time managementÃ¢ but I make sure I do my therapies so I can play football, hockey, and spend time with my family and friends being normalÃ¢
- GunnarÃ¢s biggest role models have been his parents, Ã¢They are always very positive and pushing me forwardÃ¢ states Gunnar.
- Regarding college life and being independent and compliantÃ¢ Ã¢I have always been pretty independent growing up so going to college is just the next step in the process to be even more independent and take care of my health. I always remember that my health comes firstÃ¢.
- Ã¢ I have CF but I donÃ¢t let it stop me from doing things in life, including going away to college Ã¢ I control my own destinyÃ¢Ã¢

This podcast was made possible through and unrestricted educational grant from EURAND to The Boomer Esiason Foundation.

Episode #0068 Med Systems Percussor 5000 â Airway Clearance Focused, Effective, and Easy

podcast@esiason.org — Tue, 28 Oct 2008 13:50:00 -0700

Title: Med Systems Percussor 5000 Ã¢ Airway Clearance Focused, Effective, and Easy
Jim Davis launched Med Systems in 1976 after a very successful career designing life support systems. Jim, an M.I.T. graduate and accomplished engineer launched the Electro Flo 5000 percussor for home use, allowing patients to add a valuable tool to their toolbox of treatment options.
- The Electro Flo 5000 percussor took 5 years to develop and is an electronically operated jackhammer intended for chest vibration/airway clearance.
- The percussor is easy to use, weighs on 6 lbs, perfect for travel, and as Jim states: Ã¢Great for going on vacation or the college dorm roomÃ¢.
- The percussor is self-administered and you can customize your chest pt treatments, adjust speed and power and focus on each individual lobe.
- Jim states: Ã¢The Electro Flo 5000 gives patients great lung clearance from the true percussor action and is more effective than just vibration.
- The percussor costs approximately $2,500; you need a prescription, and can be submitted to insurance.
- For more information call Sharon Johnson at 800-345-9061
- Website: www.medsystems.com

Episode #0067 CF, College Life, Sports, and Compliance â Sean Bourgeois is Passionate- Windows WMV Version

podcast@esiason.org — Mon, 29 Sep 2008 20:54:00 -0700

Title: CF, College Life, Sports, and Compliance Ã¢ Sean Bourgeois is Passionate
Sean Bourgeois, 19 years old with cystic fibrosis (CF) is playing junior hockey and attending University of Phoenix Ã¢onlineÃ¢ while he pursues his dreams of playing hockey for the NHL.
- Sean was diagnosed at age 4 and resides in Maine with his family.
- Ã¢My father got me involved in sports and hockey because he thought it would help my lungs and itÃ¢s been the best thing for meÃ¢ states Sean.
- Ã¢Living with CF has NOT prevented me from doing things in lifeÃ¢ states Sean Ã¢CF is not going to stop me from reaching my goalsÃ¢.
- Ã¢The hardest thing about growing up with CF is the treatmentsÃ¢ but I have to do them so I can play hockey and spend time with my family and friends.
- SeanÃ¢s biggest role models have been his parents, Ã¢They are always there for me and they have gone above and beyondÃ¢ states Sean.
- Regarding college life and being independentÃ¢ Ã¢I am ready to be responsible because I have a lot of BIG goalsÃ¢ states Sean.
- Ã¢ I want to be the first person with CF to play professional hockey in the NHLÃ¢Ã¢
This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 6th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0067 CF, College Life, Sports, and Compliance â Sean Bourgeois is Passionate

podcast@esiason.org — Mon, 29 Sep 2008 12:09:00 -0700

Episode #0066 Living & Loving Life with CF Post Transplant â Andrea Eisenman talks about her âNew Lifeâ (iPod Version)

podcast@esiason.org — Mon, 04 Aug 2008 11:49:00 -0700

Title: Living & Loving Life with CF Post Transplant Ã¢ Andrea Eisenman talks about her Ã¢New LifeÃ¢

Andrea Eisenman, 43 years old with cystic fibrosis (CF), post double lung transplant 8 years, and engaged to be married. Andrea is volunteering with CF Roundtable, a newsletter published by adults with CF, and also working on her film project about CF entitled Ã¢Nobody Should KnowÃ¢ and LIVING BREATHING SUCCEEDING on a daily basisÃ¢

Andrea was diagnosed with CF at 9 months, grew up in NYC, and studied art at SUNY Purchase
Ã¢Exercise is key going into a transplant so I used to swim in the pool using oxygen as my mother walked along the side of the pool holding the oxygen tankÃ¢ states Andrea
Andrea was transplanted at New York Presbyterian in April 25th 2000 and was amazed at what if felt like to take a breath without coughing Ã¢ Ã¢it is beyond comprehension, I never felt this wellÃ¢.
Ã¢Going into transplant it is extremely important to have a support team Ã¢ my mom is amazing!Ã¢ states Andrea
Ã¢Life goes on post transplant and I still have CF but my quality of life is betterÃ¢
Andrea competes in the Transplant Games (International Competition for people that have had a transplant) in tennis, biking, running, and swimming.
AndreaÃ¢s advice to others facing a transplant include; investigate good transplant centers, talk to others that had a transplant, exercise, go to support groups, and have a strong support group of family and friends.
Ã¢ I appreciate being alive Ã¢ itÃ¢s a giftÃ¢Ã¢ states Andrea.

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 5th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0066 Loving Life with CF Post Transplant â Andrea Eisenman talks about her âNew Lifeâ (Windows Version)

podcast@esiason.org — Mon, 04 Aug 2008 10:02:00 -0700

Andrea was diagnosed with CF at 9 months, grew up in NYC, and studied art at SUNY Purchase
Ã¢Exercise is key going into a transplant so I used to swim in the pool using oxygen as my mother walked along the side of the pool holding the oxygen tankÃ¢ states Andrea
Andrea was transplanted at New York Presbyterian in April 25th 2000 and was amazed at what if felt like to take a breath without coughing Ã¢ Ã¢it is beyond comprehension, I never felt this wellÃ¢.
Ã¢Going into transplant it is extremely important to have a support team Ã¢ my mom is amazing!Ã¢ states Andrea
Ã¢Life goes on post transplant and I still have CF but my quality of life is betterÃ¢
Andrea competes in the Transplant Games (International Competition for people that have had a transplant) in tennis, biking, running, and swimming.
AndreaÃ¢s advice to others facing a transplant include; investigate good transplant centers, talk to others that had a transplant, exercise, go to support groups, and have a strong support group of family and friends.
Ã¢ I appreciate being alive Ã¢ itÃ¢s a giftÃ¢Ã¢ states Andrea.

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 5th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0065 Challenges of Health Insurance â Beth Sufian Informs the CF Community

podcast@esiason.org — Mon, 16 Jun 2008 11:38:00 -0700

Title: Episode #0065 Challenges of Health Insurance Ã¢ Beth Sufian Informs the CF Community

Beth Sufian, 42 years old and compliant with cystic fibrosis (CF). Beth is happily married living in Texas, an attorney, serves on the CF Foundation Advisory Task Force on adult issues and is LIVING BREATHING SUCCEEDING on a daily basisÃ¢

Beth talks about knowing your legal rights and advocating for yourself.
Beth discusses who qualifies for Social Security benefits, Medicare, and Medicaid.
Learn pointers on how to obtain health insurance for children and adults with CF and how to deal with increasing drug co-pays.
Beth discusses SSI, SSDI, Adult CF programs, COBRA, pre-existing clauses, Family Medical Leave Act, and YOUR medical records.
Ã¢ Be compliant Ã¢ take care of yourself first and foremostÃ¢ is BethÃ¢s main advice.
Ã¢Big is Better when it comes to health insuranceÃ¢ states Beth.

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢ Podcast/Vodcast series is the 4th of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0064 Cystic Fibrosis and Starting a Family (Windows WMV Format)

podcast@esiason.org — Fri, 09 May 2008 14:36:00 -0700

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Jenny Davison, 39 years old with cystic fibrosis (CF), happily married, the proud mother of her 10 year-old daughter Dara and LIVING BREATHING SUCCEEDING on a daily basisÃ¢
A little over a decade ago marriage and starting a family seemed to be an unthinkable dream for adults with CF. Through advancements in treatment of the disease and being compliant the dream became a reality for Jenny and her husband Tim.

Jenny Davison grew up in Long Island and is one of 9 children.
Ã¢Family is Extremely important to meÃ¢? states Jenny.
Deciding to have a family when you have CF can be risky business butÃ¢ Ã¢Starting a family while you are healthy and always being compliant is keyÃ¢?
Ã¢It is challenging for a woman with CF to have a child and you and your husband should know the risks but most importantly, take care of yourself firstÃ¢? states Jenny.
Jenny maintained her career as a nurse for seven months of her pregnancy and believes in the importance of a strong support system.
Jenny states: Ã¢Although I have cystic fibrosis, Tim and I never regret having a childÃ¢ Dara has added so much to our livesÃ¢?
JennyÃ¢s advice: Ã¢Having CF does not mean you stop your life Ã¢ you just keep living and have a career, think about getting married and starting a familyÃ¢ you do what everyone else does Ã¢ I just have to work a little harder at it with CFÃ¢?
Ã¢Everybody has something and cystic fibrosis is what I haveÃ¢Ã¢?

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢? Podcast/Vodcast series is the 3rd of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0064 Cystic Fibrosis and Starting a Family (Apple iPod Format)

podcast@esiason.org — Fri, 09 May 2008 13:24:00 -0700

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Title: Cystic Fibrosis and Starting a Family

Jenny Davison, 39 years old with cystic fibrosis (CF), happily married, the proud mother of her 10 year-old daughter Dara and LIVING BREATHING SUCCEEDING on a daily basisÃ¢
A little over a decade ago marriage and starting a family seemed to be an unthinkable dream for adults with CF. Through advancements in treatment of the disease and being compliant the dream became a reality for Jenny and her husband Tim.

Jenny Davison grew up in Long Island and is one of 9 children.
Ã¢Family is Extremely important to meÃ¢? states Jenny.
Deciding to have a family when you have CF can be risky business butÃ¢ Ã¢Starting a family while you are healthy and always being compliant is keyÃ¢?
Ã¢It is challenging for a woman with CF to have a child and you and your husband should know the risks but most importantly, take care of yourself firstÃ¢? states Jenny.
Jenny maintained her career as a nurse for seven months of her pregnancy and believes in the importance of a strong support system.
Jenny states: Ã¢Although I have cystic fibrosis, Tim and I never regret having a childÃ¢ Dara has added so much to our livesÃ¢?
JennyÃ¢s advice: Ã¢Having CF does not mean you stop your life Ã¢ you just keep living and have a career, think about getting married and starting a familyÃ¢ you do what everyone else does Ã¢ I just have to work a little harder at it with CFÃ¢?
Ã¢Everybody has something and cystic fibrosis is what I haveÃ¢Ã¢?

This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢? Podcast/Vodcast series is the 3rd of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0063 Relationships and CF - Tiffany Christensen Speaks

podcast@esiason.org — Tue, 01 Apr 2008 14:37:00 -0700

Title: Relationships and CF Ã¢ Episode #0063 Tiffany Christensen Speaks Out!

Tiffany Christensen, 34 years old with cystic fibrosis is LIVING BREATHING SUCCEEDING on a daily basisÃ¢

With the help of todayÃ¢s therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world.
In this podcast, 34-year-old CF survivor Tiffany Christianson talks about the role of CF in establishing new relationships. Tiffany is the recipient of 2 double lung transplants and the author of the book Sick Girl Speaks. In this conversation with her, she dives into topics such as the importance of remaining compliant on a daily basis as well as the tricky issue of revealing your CF to your newfound friend. Whatever you do, she says, Ã¢donÃ¢t lose your identity in a relationship and ignore your CFÃ¢?.

Key messages in the Podcast include:

Tiffany is a relationship driven person and believes telling about your CF is good, but that Ã¢less is moreÃ¢? at the beginning of a romantic relationship.
Ã¢CF adds more layers to relationships but I am worthy of it!Ã¢? says Tiffany.
Tiffany has learned to Ã¢stop making my disease my identityÃ¢? and to start communicating, enjoying, and having fun in a relationship Ã¢ Ã¢We are a teamÃ¢Ã¢?
Relationships involve a lot of work and vulnerability Ã¢ make sure you do your homeworkÃ¢ Ã¢Remember, like all relationships people may not accept each other due to certain likes/dislikes and that includes CFÃ¢? states Tiffany.
Ã¢DonÃ¢t search for your worth in someone elseÃ¢s armsÃ¢Ã¢? says Tiffany.
TiffanyÃ¢s advice: Ã¢ CF should be a motivator to get in a relationship. Relationships enhance your life! I have no regrets!Ã¢?
www.sickgirlspeaks.com

* This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢? Podcast/ Vodcast series is the 2nd of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0062 Jerry Cahill - Importance of Exercise (Apple TV Video)

podcast@esiason.org — Wed, 06 Feb 2008 17:00:00 -0800

Title: Jerry Cahill Ã¢ Exercising is Key to Being Compliant with CF

Jerry Cahill, 51 years old with cystic fibrosis is LIVING BREATHING SUCCEEDING on a daily basisÃ¢

With the help of todayÃ¢s therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world. Ã¢Jerry Cahill Ã¢ Exercising is Key to Being Compliant with CF,Ã¢? features Jerry Cahill, a 51-year-old man with CF. Jerry talks about exercising as a form of CF therapy, sports improving his quality of life, exercising outdoors to keep his lungs CLEAR, and the importance of compliancy on a daily basis. JerryÃ¢s philosophy is NEVER NEVER GIVE UP!Ã¢?
Key messages in the Podcast include:

Jerry believes exercise and sports have made a major impact on improving his health and quality of life physically and mentally.
Exercise outdoors to help keep your lungs clear.
Ã¢Simple exercises like walking, jogging, stretching, push-ups, quick knee drills, and lunges help move the secretions and clear out the lungsÃ¢? states Jerry
Time management is key to CF and maintaining your daily therapy routine so you can continue socializing and enjoying the great opportunities and people in life.
Jerry states; Ã¢Do not let CF stop youÃ¢ just get out there and live life to the fullest!Ã¢?

* This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢? Podcast/Vodcast series is the 1st of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0062 Jerry Cahill - Importance of Exercise (Apple iPhone/iPod Video)

podcast@esiason.org — Wed, 06 Feb 2008 16:27:00 -0800

Jerry believes exercise and sports have made a major impact on improving his health and quality of life physically and mentally.
Exercise outdoors to help keep your lungs clear.
Ã¢Simple exercises like walking, jogging, stretching, push-ups, quick knee drills, and lunges help move the secretions and clear out the lungsÃ¢? states Jerry
Time management is key to CF and maintaining your daily therapy routine so you can continue socializing and enjoying the great opportunities and people in life.
Jerry states; Ã¢Do not let CF stop youÃ¢ just get out there and live life to the fullest!Ã¢?

* This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢? Podcast/Vodcast series is the 1st of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0062 Jerry Cahill - Importance of Exercise (Windows WMV File)

podcast@esiason.org — Wed, 06 Feb 2008 14:59:00 -0800

Jerry believes exercise and sports have made a major impact on improving his health and quality of life physically and mentally.
Exercise outdoors to help keep your lungs clear.
Ã¢Simple exercises like walking, jogging, stretching, push-ups, quick knee drills, and lunges help move the secretions and clear out the lungsÃ¢? states Jerry
Time management is key to CF and maintaining your daily therapy routine so you can continue socializing and enjoying the great opportunities and people in life.
Jerry states; Ã¢Do not let CF stop youÃ¢ just get out there and live life to the fullest!Ã¢?

* This Ã¢LIVING. BREATHING. SUCCEEDING.Ã¢? Podcast/Vodcast series is the 1st of 12 made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0061 Cystic Fibrosis Institute (CFI) and Dr. Steven Boas

podcast@esiason.org — Thu, 17 Jan 2008 16:30:00 -0800

Title: Cystic Fibrosis Institute (CFI) and Dr. Steven Boas

The Cystic Fibrosis Institute (CFI) is committed to supporting those affected by cystic fibrosis in the Chicago area and to making a difference by being a meaningful and active source of assistance and advocacy for all CF individuals and families for dealing with the everyday challenge of cystic fibrosis.

Dr. Steven Boas, a Board-Certified Pediatric Pulmonologist, is dedicated to the care of children and adolescents with acute or chronic respiratory disorders.

The Cystic Fibrosis Institute was founded in 2003 on the fundamental principle that every person with CF deserves the opportunity to realize his or her full potential, to lead as normal life as possible and, despite the many obstacles they and their families face, share in the joys of life itself.

CFI is a 501(c) (3) Not for Profit organization based in Glenview, Chicago
Dr. Boas states: Ã¢CFI offers services/educational programs for people with CF and their families.Ã¢?
CFI develops strategic partnerships with local and national businesses for support.
CFI offers clinical assistance and supports research investigations
Ã¢The Winter Education Retreat being held on February 16th 2008 is our biggest event and is being held in Glenview, Illinois (just outside of Chicago)Ã¢? states Dr. Boas.
Winter Education Retreat focuses on practical issues for people with CF with the goal of giving people with CF at least one more tool that they did not have prior to the event.
Dr. Boas is a major advocate of exercise and believes exercise is key or Ã¢just getting people to moveÃ¢Ã¢?
More info available at: www.cysticfibrosisinstitute.org or call 847-998-3434

Episode #0060 Linda Hood, Mother of Twin Boys with CF - Talks about Transitioning

podcast@esiason.org — Fri, 21 Dec 2007 13:31:00 -0800

Linda Hood, Mother of Twin Boys with CF, Talks about TransitioningÃ¢

Linda Hood from Cincinnati, Ohio talks about growing up with twin boys with CF Ã¢ Keith and Kyle Ã¢ and transitioning to an adult CF center. LindaÃ¢s boys were born 4 weeks early and found out they had cystic fibrosis at 6 months of age.

Ã¢Finding out my twin boys had cystic fibrosis was the most devastating thing in my lifeÃ¢Ã¢? states Linda
Linda states; Ã¢the doctors told a horrifying story and said my boys would not live to 18 years of ageÃ¢?
Linda and her family were proactive and started fundraising for a cure.
Being a caregiver is scary due to concerns/fear of germs at school.
Linda discusses making the transition from pediatric to adult CF center and the resources available to adults.
Linda gets her support from her husband - Ã¢My husband is my strength and gets me through the tough timesÃ¢Ã¢?
Ã¢Stay hopefulÃ¢ do what the doctors tell you to doÃ¢ do not take shortcuts,Ã¢? states Linda.
LindaÃ¢s advice: Ã¢Let your son or daughter be boys or girls and ENJOY LIFE!Ã¢?
Keith and Kyle are in college today and LIVING BREATHING SUCCEEDING.

Courtney Ward Runs for Team Boomer

Tue, 06 Nov 2007 12:07:00 -0800

Courtney Ward Runs NYC Marathon for Team Boomer in 4 Hours 56 Minutes

Episode #0059 Justin Carlson, Transitioning from High School to College - The Next Step

podcast@esiason.org — Fri, 12 Oct 2007 12:47:00 -0700

Justin Carlson, Transitioning from High School to College Ã¢ The Next Step to Success.

With the help of todayÃ¢s therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world.

Ã¢Justin Carlson, Transitioning from High School to College Ã¢ The Next Step to Success,Ã¢? features Justin Carlson, an 18-year-old young man with CF. Justin talks about becoming independent and dealing with doctorÃ¢s appointments, CF therapies, going away to college vs. commuting, and the importance of compliancy on a daily basis. Justin believes in the importance of the Ã¢doctor/patient relationshipÃ¢? and Ã¢taking control of your CF.Ã¢?

Key messages in the Podcast include:

Taking control of your CF and not letting it catch up on you, even when you donÃ¢t feel sick, is crucial for a good quality of life.
Developing a strong relationship and communicating with your doctor and health care team, at an early age enhances your independence.
Time-management and Ã¢practiced independence and confidenceÃ¢? help prepare individuals with CF for college and the real world.
The keys to staying healthy are compliance to medications, therapies, exercise, and good nutrition.
Parents should give their child with CF Ã¢remindersÃ¢? regarding therapy, and instill independence in them at an early age.
Parents should encourage their child to spend separate one-on-one Ã¢qualityÃ¢? time with their doctor.

* This Podcast is made possible through and unrestricted educational grant from Genentech to The Boomer Esiason Foundation.

Episode #0058 Scott Johnson Competes in Hawaii Ironman for Team Boomer

podcast@esiason.org — Wed, 26 Sep 2007 12:51:00 -0700

Scott Johnson is 35 years old with cystic fibrosis and LIVING, BREATHING, SUCCEEDING as he celebrated 6 years post double lung transplant on September 15th. Ã¢Dreams do come true,Ã¢? states Scott, as he gets ready for the Hawaiian Ironman Championships on October 13th 2007 in Kona, Hawaii. This is the most prestigious race in triathlon and the pinnacle of most peopleÃ¢s career. The Hawaii Ironman is the equivalent of the Tour de France, the Super Bowl, the World Series, and Wimbledon. Scott, competing for Team Boomer, has accepted this challenge to try and inspire people with CF to make exercise a part of their normal routine.

Scott grew up in Jacksonville, North Carolina and was diagnosed with CF at 2 months.
Scott received a double lung transplant on September 15th 2001.
Ã¢Exercise and a Positive AttitudeÃ¢? helped Scott make it through the surgery.
Scott states: Ã¢My quality of life with my new lungs is better than living with CFÃ¢?.
On MotherÃ¢s Day in May 2003, Scott crossed the finish line of his first triathlonÃ¢ a gift for himself and his mother Marilyn.
Scott has competed in over 25 triathlons of various distances and is now ready for the most elite triathlon, the Hawaii Ironman (swim 2.4 miles, bike 112 miles, and run 26.2 miles)
ScottÃ¢s family and fiancÃƒ, Leanne, will be cheering him on in Hawaii and Scott will be getting married 3 days after the Ironman competition.
Prior to each race Scott writes his transplant date on his forearm to remind himself of where he came from and his Ã¢new beginningÃ¢?.
By competing for Team Boomer, Scott is helping to raise money for the Exercise for Life scholarship for people with CF. Join Scott and the cause: www.firstgiving.com/cfironman
Check out ScottÃ¢s photoÃ¢s and video at: www.myspace.com/slowesttriathlete
Ã¢Do Not Be Afraid of DeathÃ¢ Be Afraid of the Half Lived LifeÃ¢?
ScottÃ¢s words of encouragement for others with CF or facing a transplant: Ã¢Maintain a positive outlook, donÃ¢t give up, and keep exercising Ã¢ miracles do happenÃ¢Ã¢?

Episode #0057 Abby Tranel Wins 2007 Exercise for Life Scholarship

podcast@esiason.org — Thu, 30 Aug 2007 12:39:00 -0700

Title: Abby Tranel Wins 2007 Exercise for Life Scholarship

Abby Tranel from Hampton, Nebraska wins $10,000 scholar-athlete award for people with CF. Abby ran the 1.5 mile run in 10 minutes 19 seconds at Nebraska Wesleyan UniversityÃ¢s track in Lincoln, Nebraska. Abby is a graduate of Hampton High School in Hampton, NE and graduated with a 3.5 G.P.A. and will be attending Nebraska Wesleyan University in the fall.

Abby has always been involved in sports including volleyball, basketball, and track. School activities include the Student Council, Cheerleading, Speech, Drama, and President of the National Honor Society.
Abby was diagnosed with CF at birth and also has an older sister with cystic fibrosis that competed nationally in track & field for University of Nebraska.
Ã¢Exercise and therapies for CF have very much become an integral part of my life and daily routine.Ã¢? states Abby.
Ã¢After a few months of steady running, my lung function tests improved dramatically. It was not just the test results that kept me going with runningÃ¢ I just simply felt better, and most importantly felt that I was now in control of my CF, it was no longer controlling me!Ã¢? Abby states confidently.
Abby lives a normal life and does not make a big deal about CF.
Ã¢My mom has taught me and my sister to be very independent at an early age and I thank her for thatÃ¢Ã¢?
Regarding collegeÃ¢ Ã¢I look forward to meeting new people and am beginning to realize all the opportunities that college and our world has to offer.Ã¢?
Besides being compliant to her medication and therapy, Abby has learned the value of exercise, keeping a routine, and following through for positive results.
Ã¢I have realized that if you want to be big you have to dream bigÃ¢ and that is just what I am doing despite having CF!Ã¢? states Abby.

Episode #0056 Patrick Robinson wins 2007 Exercise for Life Scholarship

podcast@esiason.org — Fri, 24 Aug 2007 14:07:00 -0700

Title: Patrick Robinson wins 2007 Exercise for Life Scholarship

Patrick Robinson from Sandown, NH wins $10,000 scholar-athlete award for people with CF. Mr. Robinson ran the 1.5 mile run in 10 minutes 10 seconds at his former high school Timberlane Regional H.S. in Plaistow, NH as his mom, dad, and younger brothers Andrew and Christopher cheered him on. Patrick recently graduated with a 3.9 G.P.A. and will be attending Boston University in the fall.

Patrick is very involved in sports including skiing, hiking (Patrick is an Eagle Scout), track, and Ultimate Frisbee and attributes exercise to playing a major part in keeping his lungs clear.
Ã¢Playing the trumpet in marching band also was a great form of airway clearanceÃ¢? states Patrick.
Patrick was diagnosed with CF at 3 months of age.
Great Strides Walk-a-Thon team Ã¢PatrickÃ¢s PatrollersÃ¢? walks every year to raise money for CFF and a cure.
Regarding collegeÃ¢ Ã¢I look forward to meeting new people and being more independentÃ¢?.
Besides being compliant to his medication and therapy, Patrick goes above and beyond this daily ritual by running 2 miles everyday.
Ã¢I believe in embracing the disease and not running from itÃ¢? states Patrick.

Episode #0055 Kristin McFall, Time Management and Staying Compliant in Adulthood

Mon, 23 Jul 2007 16:19:00 -0700

Title: Kristin McFall, Time Management and Staying Compliant in Adulthood

With the help of todayÃ¢s therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling adults with CF to pursue their dreams by entering college and the career world.

Ã¢Kristin McFall, Time Management and Staying Compliant in Adulthood,Ã¢? features Kristin McFall, a 36-year-old career woman with CF. Kristin talks about succeeding in life, her career, traveling, and winning the battle with CF on a daily basis through therapy compliance. Kristin believes in the importance of Ã¢understanding your disease and partnering up with your health care team.Ã¢? The podcast is now available for downloading on www.jerrycahill.com beginning on May 4th, 2007.

Kristin discusses the importance of being compliant and proactive as an adult with CF while maintaining a career and busy social life.

Highlights from the Podcast include:

Taking care of your health and being compliant with medical therapies are an integral part to being successful in your career as an adult with CF.
The key ingredients to staying healthy and having a better quality of life are: compliance to medications & therapies, exercise, nutrition, hydration, and sleep.
CF is a life-long illness therefore you must learn to be an expert with yourself and revel in the day!
t is important to maintain a partnership with your CF Center and stand up for yourself.
CF adults must learn to Ã¢multi-taskÃ¢? and Ã¢stay clearÃ¢? by being disciplined with your health care.
KristinÃ¢s Ã¢Fabulous 4Ã¢? tips for being compliant include: bronchodilators, Pulmozyme, airway clearance, and inhaled antibiotics.

Episode #0054 The Big Fun Box

Mon, 02 Jul 2007 16:04:00 -0700

Ã¢Making Fun ContagiousÃ¢?Ã¢

Jo Anne McKinney and Grant Prather make BIG FUN for many pediatric patients with the BIG FUN BOX. The mission statement: To share with pediatric patients and their familiesÃ¢ ways to use their imagination to give them comfort and fun in the midst of stressful situations. The BIG FUN BOX is filled with a stress toy, folding ruler, colored pencils, pencil sharpener, jigsaw puzzle, HeadGames, FindÃ¢ems, imagination pad, thank you notes, plastic stencil, and playing cards.

Ã¢The BIG FUN BOX is filled with imagination and you can let it take you wherever you want to goÃ¢Ã¢? states Jo Anne
Jo Anne has spent many hours in the hospital with her son Grant, due to his cystic fibrosis, and they learned to Ã¢make their own funÃ¢?
The BIG FUN BOX is an activity box for children in the hospital with chronic illnesses (ages 7 to 12)
The BIG FUN BOX was launched in October 2006 and has delivered over 3,100 boxes in 9 states to 31 hospitals. Ã¢Our goal is to raise $2.0 million and deliver 100,000 BIG FUN BOXESÃ¢? states Jo Anne.
Ã¢The BFB is a great vehicle to rescue patients after being in the hospital for 5-6 days and you just find out you will be in longerÃ¢?
The BIG FUN BOX seeks corporate sponsors to bring BIG FUN to children with chronic diseases. Jo Anne needs to raise $27,000 before 1,000 boxes can go into production.
The BIG FUN BOX is a 501 c (3) non-profit organization.

For more info: www.thebigfunbox.org or call: 904-730-0956

Episode #0053 Adult CF Family Day - MOV File

Wed, 20 Jun 2007 13:49:00 -0700

Title: Adult Cystic Fibrosis Day

Baylor University Medical Center in Houston, Texas held a ground breaking event with the first ever Adult CF Day. This educational event featured Boomer Esiason and Dr. Marcia Katz speaking about how we are "living a medical miracle" with 40% of the CF population being adults and living longer with a better quality of life.

Adults with CF are attending college, have careers, and having families.
Adults with CF maintain a "positive mental attitude" and keep raising the bar.
With the explosion of the adult CF population "transitioning" to an adult program is crucial.
Adults with CF are living longer and maintaining a better quality of life.
Adults are mentors for younger individuals with CF and their families.

Episode #0053 Adult Cystic Fibrosis Day - WMF File

podcast@esiason.org — Wed, 20 Jun 2007 13:28:00 -0700

Title: Adult Cystic Fibrosis Day

Baylor University Medical Center in Houston, Texas held a ground breaking event with the first ever Adult CF Day. This educational event featured Boomer Esiason and Dr. Marcia Katz speaking about how we are Ã¢living a medical miracleÃ¢? with 40% of the CF population being adults and living longer with a better quality of life.

Adults with CF are attending college, have careers, and having families.
Adults with CF maintain a Ã¢positive mental attitudeÃ¢? and keep raising the bar.
With the explosion of the adult CF population Ã¢transitioningÃ¢? to an adult program is crucial.
Adults with CF are living longer and maintaining a better quality of life.
Adults are mentors for younger individuals with CF and their families.

Episode #0052 Kyle Connolly Interview

Tue, 12 Jun 2007 13:06:00 -0700

Title: Kyle Connolly Talks about being Compliant, Exercise, and College Life.

Kyle Connolly is a 21 year old college student that Ã¢stays clearÃ¢? by doing aerosols and vest treatments 3 times per day and exercising on a daily basis to keep his lungs clear. Kyle works very hard to stay healthy so he can have a better quality of life and enjoy!

Kyle was diagnosed at 7 weeks due to Ã¢failure to thriveÃ¢?
Growing up with CF was non-eventful until high school when he started having more infections.
Kyle attends Xavier University in Cincinnati, Ohio and will be a senior next year.
Ã¢Being involved in sports all my life has helped keep my lungs clear!Ã¢?
Kyle participated in football, baseball, soccer, wrestling, and cross country growing up and now is a varsity cheerleader at Xavier University.
Kyle also enjoys running and competes in the FLYING PIG MARATHON every May in Cincinnati, Ohio. Kyle is part of a team and runs the Ã‚ marathon (13.1 miles)
Ã¢Time management is the biggest challenge I face daily living with CF but I just do it Ã¢ I have no choice if I want to enjoy everything life has to offerÃ¢? states Kyle.
Kyle is very excited about all the new drugs in the pipeline for people with CF.

Episode #0051 Smart Vest The Airway Clearance System

Wed, 09 May 2007 11:40:00 -0700

Bob Hansen, Chairman, CEO, and co-founder of Electromed, Inc in 1992, makers of Smart Vest, discusses the newest and most advanced airway clearance system SMARTVEST. The vest is designed for comfort and ease-of-use to support patient compliance as well as being efficient, portable, and cost effective.

- Smart Vest Ã¢ airway clearance system or High Frequency Chest Wall Oscillation (HFCWO) is the mechanical loosening, mobilization and release of excess mucous.
- The Smart Vest is effective, convenient, and comfortable. Patented vest design (soft fabric & washable) delivers HFCWO with a calmer, gentler, and more relaxed treatment experience.
- Generator is programmable to assure consistent treatments each day.
- Vest size fits small toddlers to large adults.
- Wheeled Smart Vest Trimeline Carrier travels easily and fits inside airplane as a carry-on.
- Smart Vest offers lifetime warranty and upgrade policy.
- Ã¢Innovation is an important part of our companyÃ¢? states Bob Hansen
- All field staff are Respiratory Therapists.
- Smart Vest is an international company and offers a 24 hour toll free number.
- Ã¢The compact size of Smart Vest makes it a great for people with CF going away to collegeÃ¢? states Bob Hansen
- Smart Vest is based in New Prague, MN. For more info call: 800-462-1045.
- Website: www.electromed-usa.com

EXERCISE for LIFE SCHOLARSHIP

Mon, 30 Apr 2007 09:39:00 -0700

EXERCISE for LIFE SCHOLARHIP The Boomer Esiason Foundation has created a scholar-athlte award to assist cystic fibrosis senior high school athletes pursuing undergraduate degrees.

- "Exercise is the single most important thing in my life that keeps me healthy... jogging is a universal activity that everyone can partake in without the need for an expensive gm or pool membership" states Jerry Cahill who is a 50 year-old with CF. Jerry has been exercising all his life in spite of having CF.
- The goal of the scholar athlete award is to raise awareness, improve the quality of life and lifespan of individuals with CF through the power of daily physical exercise.
- The scholarship will be awarded annually based on demonstrated financial need, academic accomplishment and athletic ability in the area of running. All finalist will be timed in a 1.5 mile jog.
- Award: 1 female winner and 1 male winner each receiving $10,000. awarded to the college of their choice.
- The student/athlete should be jogging on a regular basis and training for the 1.5 mile run. All candidates will be judged on time.
- Scholarship launches May 1st 2007
- Deadline July 29th 2007
- For more information and applications go to: www.cfscholarships.com

Laps for CF

podcast@esiason.org — Thu, 12 Apr 2007 11:47:00 -0700

Laps for CF Foundation
...on the road to a cure...

The Laps for CF Foundation is an organization based out of Birmingham, Alabama that fights Cystic Fibrosis everyday. Together with CF supporters across the United States, the laps for CF Foundation raises money and awareness for Cystic Fibrosis.

The money the Foundation raises is awarded to 3 main organizations: The Cystic Fibrosis Foundation, CF Hope for Alabama, and CF Care Clinics.
Emily Schreiber was diagnosed with cystic fibrosis in the winter of 2003. After diagnosis and reading a book called Karen's Ride - where a young girl, Karen, raised money for her local hospital... Emily decided to do the same for Cystic Fibrosis.
The first year Emily swam at Wald Park in Vestavia, Alabama and raised over $60,000.
In 2005 Emily swam with the Auburn University swim team and raised over$220,000.
Emily plans on teaming up with the Boomer Esiason Foundation to combat cystic fibrosis by launching Swim-a-Thons with 15+ Universities across the nation.
For more information: www.lapsforcf.org
E-Mail Emily at: emily@lapsforcf.org

Episode #0050 Brian's Ride

podcast@esiason.org — Fri, 06 Apr 2007 12:20:00 -0700

Title: BrianÃ¢s Ride

Brian McCandless is like any average nineteen year old university student except, like 30,000 Americans, he has cystic fibrosis. On May 16th 2007 Brian will cycle from Pittsburgh, PA to Tallahassee, Florida and backÃ¢ to raise awareness for cystic Fibrosis. Brian will bike over 2,000 miles (25 day trip) averaging 100 miles per day.

- Brian was diagnosed at 2 months of age due to Ã¢failure to thriveÃ¢? and is from West Sunbury, PA.

- Brian is a freshman at Slippery Rock University and a member of the cycling club

- Ã¢I believe biking is the best form of airway clearanceÃ¢? states Brian.

- According to Brian Ã¢People with CF are often told not to over exert themselves. I say EXERT ON! No one should ever be told they cannot do somethingÃ¢?

- Brian believes the most important factor in maintaining his health is Ã¢exercise and nutritionÃ¢?

- Ã¢My goal for BrianÃ¢s Ride is to increase CF awareness, raise money for CF research, and most importantly, give hope to children who are diagnosed with CF.

- To donate to Brian's Ride or for more information go to: www.briansride.org

GOOD LUCK BRIAN!

Blubrry Jam Featuring Brother Love

podcast@esiason.org — Wed, 04 Apr 2007 13:56:00 -0700

Blubrry Jam Featuring Brother Love to raise funds for Boomer Esiason Foundation. Come Join the Fun!

Date
Saturday, Apr 7, 2007

Time
7:00 pm - 11:00 pm

Location
Canal Room
285 W. Broadway
New York, NY 10013 Date: April 7th
Location: Canal Room
New York, NY

Price: $18 Online
http://blubrryjam.eventbrite.com/

$20 at the Door

I hope to see you at the Canal Room

Episode #0049 CF Great Strides NYC Walk - Raising Money for a Cure!

podcast@esiason.org — Fri, 30 Mar 2007 11:18:00 -0700

Title: CF Great Strides NYC Walk Ã¢ Raising Money for a Cure!

Dawn and Stan Zolek are parents of 3 year old Stanley, who has CF and a 1 year old daughter who is a carrier of the gene. They are chairing the NYC Great Strides Walk in their neighborhood, Battery Park City.

The event is Ã¢feel good type of day!Ã¢? and raises money for research to help find a cure for cystic fibrosis.

Ã¢Stanley is compliant to his daily routine and does his Ã¢work outÃ¢? (vest treatment) twice a dayÃ¢? states his dad Stan.
StanleyÃ¢s website: ilovestanleynyc.com
Ã¢CF Great Strides is a fun day with lots of family and community involvementÃ¢? states Dawn Zolek.
CF Great Strides is a 6.2 mile walk and is the Cystic Fibrosis FoundationÃ¢s largest national fundraising event. The event has 100 sites nationally and raised over $32 million last year.
The metro New York area will be hosting 4 sites for the event:
- Battery Park City, NYC on Saturday, May 19^th 9am
- Rye Playland, Rye, NY on Sunday, May 20^th 9am
- Clove Lakes Park, Staten Island, NY on Saturday, June 2^nd 9am
- Bowdoin Park, Poughkeepsie, NY on Sunday, June 3^rd 9am

More information on CF Great Strides nationally is available at: www.cff.org/great_strides

PodcastAlley.com Claim Your Feed

Mon, 26 Feb 2007 10:19:00 -0800

My Podcast Alley feed! {pca-c360b5469328cb89aa7d70dfb79fc069}

Episode #0048 Keith & Kyle Connolly Interview

podcast@esiason.org — Wed, 21 Feb 2007 11:48:00 -0800

TITLE: Ã¢The Connolly Twins Ã¢ Transitioning into Adulthood with CFÃ¢?

With the help of todayÃ¢s therapies, cystic fibrosis (CF) patients are now living longer and achieving more than ever before. Pulmonary treatments are enabling individuals with CF to pursue their dreams by entering college and the career world

Keith and Kyle Connolly, 21-year-old twin brothers and college students with CF talk about transitioning into college and adulthood. Keith and Kyle talk about growing up with CF and the lessons they have learned as they become more independent and responsible for their own health care. Keith and KyleÃ¢s mother, Linda Hood, also shares her perspective on raising twin boys with CF and learning to Ã¢let go.Ã¢?

Keith and Kyle discuss the importance of taking responsibility for their CF health care while maintaining their busy college schedules.

Highlights from the Podcast include:

Preparation and compliance are integral in making a successful transition into adulthood with CF.
The keys to staying healthy are compliance to medications, therapies, and exercise.
Time-management in college is crucial for maintaining health and quality of life.
Prior to moving away to college, begin to transition into self-ownership of health care.
It is important to maintain a relationship with your CF Center.
For parents - instill realistic hope within your child, and raise him or her to be independent; through age-appropriate responsibilities related to their health care.
When children leave the home, parents should have confidence in how their children have been taught to care for themselves.

Episode #0047 Jerry Cahill's Exercise For Life Video (Windows Media Format)

podcast@esiason.org — Tue, 06 Feb 2007 12:05:00 -0800

Title: Action speaks louder than wordsÃ¢ Ã¢EXERCISE FOR LIFEÃ¢?

EXERCISE FOR LIFE was created by the Boomer Esiason Foundation to educate, raise awareness to the importance of exercise & compliance with CF, and to raise money for college scholarships for people with CF.

The EXERCISE FOR LIFE program serves as an inspirational message to CF patients, family members & the general public about the benefits of exercise and compliance to medical advice in the Ã¢here and nowÃ¢?

- Ã¢Exercise is the single most important thing in my life that keeps me healthyÃ¢? states Jerry Cahill at 50 years old with cystic fibrosis.
- Jerry has been exercising all his life in spite of having CF - baseball, football, hockey, track & field (pole vault) and most importantly Ã¢jogging/runningÃ¢? on a daily basis.
- Doctors and CF centers Ã¢talk about itÃ¢? but we need to get everyone with CF Ã¢doing itÃ¢? Your lungs are muscles and need to be worked to keep them clear and strong.
- Besides being Ã¢compliantÃ¢? to medication and therapy routines Ã¢ exercise should be part of EVERYONEÃ¢S daily ritual.
- Jogging/walking is a UNIVERSAL activity that everyone can partake in without the need for an expensive gym membership or a pool. Jogging Ã¢outsideÃ¢? is key to oxygenating the lungs and keeping your airways clear.
- Ã¢The goal of exercise is to improve the quality of life and lifespan of individuals with CF through the power of daily physical activity

Episode #0047 Exercise For Life Video (iPod M4V Format)

podcast@esiason.org — Mon, 05 Feb 2007 10:19:00 -0800

Episode 0046: New Challenges in Obtaining & Maintaining Health Insurance

podcast@esiason.org — Fri, 19 Jan 2007 18:17:00 -0800

Beth Sufian Podcast Show notes

Title: New Challenges in Obtaining & Maintaining Health Insurance

Beth Sufian is an attorney and a 41 year-old with cystic fibrosis. She is the Director of the CF Legal Information Hotline, sponsored by CF Services Pharmacy, which has assisted over 7,000 people with CF. Beth serves on the CF Foundation Advisory Task Force on Adult Issues.

Beth talks about knowing your legal rights and advocating for yourself and children.
Beth discusses who qualifies for Social Security benefits, Medicare and Medicaid.
Learn pointers on how to obtain health insurance for children and adults with CF and how to deal with increasing drug co-pays.
CF Legal Information Hotline offers free and confidential information on legal rights of people with CF. Call: 1-800-622-0385 or Email: CFLegal@cfserv.com
Learn about the Ã¢golden nuggetsÃ¢? of HIPAA
Ã¢Keep good recordsÃ¢? suggests Beth
COBRA Insurance - Consolidated Omnibus Budget Reconciliation Act.
Beth gives pointers on Transitioning to Adulthood.
Beth also talks about Government Programs:
Beth SufianÃ¢s clients include many people with CF. She is based out of Houston, Texas and travels nationally.

With Every Breath

podcast@esiason.org — Tue, 09 Jan 2007 10:22:00 -0800

Title: With Every Breath Ã¢ stories about people living with cystic fibrosis.

Katherine Russell is 16 years old with cystic fibrosis, from Buffalo, NY. KatherineÃ¢s book has a wide variety of writers from young, old, parents, patients, doctors, and friends. It demonstrates how the individual with CF as well as family and friends deal with CF.

This book is very inspirational and educational for all involved in the world of cystic fibrosis.

Katherine is an outgoing young lady that swims on 2 teams, snowboarding, and loves socializing with her friends, music (cello) and writing.
Katherine attends high school and is a volunteer on the CF advisory panel at ChildrenÃ¢s Hospital of Buffalo to help work towards better CF care.
Ã¢I want to travel to South Africa and Europe somedayÃ¢? states Katherine.
In KatherineÃ¢s book With Every Breath, the stories range from recounts of having a child diagnosed with CF to being a patient receiving a transplant.
Some stories simply share advice and perspective, while others share stories of travel, success, understanding, and change.
For more information on the book contact Katherine Russell:
www.lifewitheverybreath.com

Give the Gift of Life

jcahill@esiason.org — Tue, 19 Dec 2006 16:58:00 -0800

New Page 2

Title: Give the Gift of LifeÃ¢

A Plea to Encourage Organ Donors - Charlie Stockley, Priority Recipient on National Organ Donor List, in Immediate Need of Lung Donor and Transplant

With most people focusing on getting through the holiday season, Charlie Stockley, 38, is fighting to get through another day waiting for a new set of lungs. Charlie is on life support and in immediate need of a lung transplant at Stanford Medical Center in Palo Alto. Charlie is up against his toughest battle with cystic fibrosis (CF). Although he is a priority lung transplant recipient on national organ donor watch lists, his condition remains tenuous as symptoms from CF complicate his recovery and threaten his life. Charlie has been on a life preserving ventilator since Tues, Dec 12, 2006, and a lung match has still not yet become available.

Charlie has been a tough fighter of this progressive, life-threatening lung disease, and has a lot to live for.
He met the love of his life 18 months ago, Margie Roper, and they are getting married on March 10, 2007. Charlie canÃ¢t wait to make a new home with Margie, and her two children, Michael and Amber who he loves very much.
Charlie grew up in Livermore, CA and has resided in San Francisco for over 10 years.
He works as an audio designer at Electronic Arts and has been a professional drummer for numerous bands, including Mojo Deluxe and Mad Dog Toor.
Please visit www.CharlieStockley.com
For more information and updates: info@charliestockley.com

December is the month of giving. We encourage everyone to make sure they are registered to show itÃ¢s important to them that others are given the opportunity to live a full and productive life. CharlieÃ¢s friends and family would greatly appreciate you getting the word out in anyway you can, as soon as you can.

Here are a few things to do:
1. Take 3 minutes to sign up online to be a donor (by state). In California go to www.donatelifecalifornia.org. Other states, go to: www.donatelife.net
2. When you sign up online, notify friends and family via email
3. Tell your family members that you have decided to become a donor so they will understand your decision and support it.
4. Say yes to donation on your driverÃ¢s license
5. If tragedy should strike someone you know, please think of Charlie, and hundreds of people like him waiting for an organ, and encourage them to give the gift of life.

Passing of Charlie Stockley
From www.charliestockley.com
Charlie Stockley passed away on the night of December 24th, 2006. We fervently believe that Charlie's courageous battle with Cystic Fibrosis has inspired countless people to register as the organ donors that someday might save the lives of others in his situation. Although Charlie didn't receive the lungs he so desperately needed, we know he would be happy if only one person was helped by his struggle. Charlie's family wishes to express their most sincere gratitude for the love, prayers and support that sustained them during their difficult ordeal and demonstrated how many lives were touched by this remarkable man. Please honor Charlie's memory either by registering as an organ donor or making a contribution to any chapter of the Cystic Fibrosis Foundation.

Thanks to all who attended Charlie's Memorial Service & Life Celebration in Livermore on Saturday, January 6th, 2007. What a sincerely beautiful & glorious gathering! Thank you for the memories & memorabilia, all the music, the laughter & tears, your warm hearts & loving arms. A true testament to the power of one. You are invited to view photos from the celebration here.

Bonus Episode #0045: Sean Hunter Presents The Night Before Christmas

podcast@esiason.org — Sun, 10 Dec 2006 12:27:00 -0800

To everyone who loves football, Christmas and children.

A special podcast presentation of the classic Christmas story

The Night Before Christmas

has been added to the Boomer Esiason web site.

www.esiason.org
&

Jerry Cahill's Cystic Fibrosis Podcast

www.jerrycahill.com

What we do want you to know is that it is OK to download this pod cast to your computer and to CDs without any cost or violation. In fact, we encourage you to do so.

Christmas is a special time, and the hope is that you can help others enjoy sharing Christmas memories and traditions with their family, neighbors and friends.

So please,

be part of the Christmas spirit, enjoy the special recording,

and pass the world along.

Always the best,

Sean Hunter

Episode #0044 Cystic Fibrosis.com Celebrates 10 year Anniversary.

podcast@esiason.org — Fri, 01 Dec 2006 13:39:00 -0800

Title: Cystic Fibrosis.com Celebrates 10 year Anniversary.

Jeanne Barnett, former computer math teacher and now President of cysticfibrosis.com, talks about her site and how "it is a support community for those dealing with cystic fibrosis" Launched in 1996 with a friend who had CF, the site was started as an experiment but evolved into a major resource for the CF Community that gives people the opportunity to discuss CF with others.

CysticFibrosis.com is a public website and you do not have to sign up.
The site has over 117,372 messages as well as 11,112 threads and 3,396 users
1.   Jeanne reads every message and the site has over 1,000 visitors per day
2.   Cystic Fibrosis.com (www.cysticfibrosis.com) is a "place to share and celebrate life!" states Jeanne Barnett.
3.   The website is global and includes: forums, blogs, faq's, library, kids, CF Center info, photo galleries, recipes, and a section for newly diagnosed.
4.   The forums include topics on adults, families, new diagnosed, nutrition/exercise, transplants, and teenagers/young people.
5.   Jeanne is passionate about her site and states; "The CF Community is ONE family and we are here to support and inspire each other"
www.cysticfibrosis.com

HAPPY 10 YEAR ANNIVERSARY!!!! KEEP UP THE GREAT WORK!!!!

Episode #0043 Rob Safuto's New York Minute Podcast - Mr. Dennehy's Party Coverage

podcast@esiason.org — Tue, 21 Nov 2006 15:30:00 -0800

A big THANKS to Mr. Rob Safuto of the New York Minute Podcast

for his coverage of the New York City Post-Marathon Party at Mr. Denney's Pub. Rob has been a Quiet Giant of the Boomer Esiason Foundation for quite a while...and was instrumental in teaching me about podcasting in early 2005.

This Podcast can also be heard on the New York Minute Podcast. The following is Rob's show notes from his podcast.

Check out all of Rob's Podcasts

http://www.podcastnyc.net (New York City Podcast Network)
http://www.newyorkminuteshow.com (Podcast Guide to New York City)
http://www.getyourflow.com (Flow is music...liberated!)
http://community.podcastnyc.net (Join the community!)

This is as close as well get to a New York City Marathon special this year on the show. Not bad though. In association with my friend Jerry Cahill, host of the Cystic Fibrosis Podcast, I covered the Team Boomer post marathon fund raiser.

The event was held at a very nice Irish Pub called Mr. Dennehy's. The pub is located at 63 Carmine St. near 7th Avenue South.

And yes I did interview one actual runner in the marathon. I also talk with Jerry about Team Boomer and mix with some locals who talk about their experiences around town.

This episode also includes a promo for an upcoming show by my pal Brother Love.

Episode #0042 Sarah Katopodis Interview

podcast@esiason.org — Fri, 17 Nov 2006 11:17:00 -0800

Title: RUN SARAH RUN!!!

Sarah Katopodis ran her 1st Marathon in NYC and ran it for Team Boomer Ã¢ Fighting Cystic Fibrosis, and we are honored!! Sarah raised over $4,000 for the FoundationÃ¢s Exercise for Life Scholarship and was presented with a game ball for her unending passion and support for the CF community.

1.   Sarah grew up in New Jersey and attended the University of Scranton and has a masters in marketing.

2.   Sarah is blessed with a beautiful loving family and has a very supportive husband, Taso, as well as 3 phenomenal sons that keep her running marathons on a daily basis Ã¢ Alex, Evan, and Steven. All were cheering Sarah on during the marathon.

3.   Ã¢As a child I used to run with my Grandfather at 6am during the summer at Long Beach IslandÃ¢? states Sarah.

4.   Sarah continued here passion for running with a running group while working in Charlotte, NC and ran 2 half marathons.

5.   SarahÃ¢s NYC Marathon application was declined a few times before finally being accepted for the 2006 NYC Marathon. Ã¢From that day forward Ã¢ the training and commitment beganÃ¢Ã¢? states Sarah.

6.   Sarah and her family launched www.cysticfibrois.com over 10 years ago Ã¢ a informative/educational/supportive site for people with CF and their families and therefore was committed to running the NYC Marathon for a cause related to cystic fibrosis.

7.   Sarah finished the marathon in 6 hours and 20 minutes and is a winner spiritually, physically, and as a committed person in the game of life Ã¢ CONGRATÃ¢S!!!!

8.   Check out SarahÃ¢s award winning blog on her marathon experience at: http://blogs.cysticfibrosis.com/index.cfm?forumid=250

Also check out cysticfibrosis.comÃ¢s website at: www.cysticfibrosis.com

Joe Kelly Runs NYC Marathon for Team Boomer

podcast@esiason.org — Mon, 13 Nov 2006 17:50:00 -0800

Donal Dennehy celebrates with Joe Kelly at Mr. DennehyÃ¢s Pub located at 63 Carrmine Street in Greenwich Village NYC. The 1st Annual Post Marathon Party was a huge fundraising success for the Boomer Esiason FoundationÃ¢s Exercise for Life scholarship program for people with cystic fibrosis.

1.   Joe Kelly runs his first marathon for Team Boomer Ã¢ Fighting Cystic Fibrosis in under 4 hours

2.   The Boomer Esiason Foundation presents Joe Kelly with an autographed football by Boomer Esiason for his great cause

3.   Donal Dennehy accommodates the Boomer Esiason Foundation at his restaurant to help raise funds for people with CF

4.   Donal is presented with a game ball for his commitment to the fight against cystic fibrosis

5.   The event was a huge success raising over $5,000. for scholarships and a fun time was had by all.

6.   Donal states Ã¢This is the first of many fundraising events that Mr. DennehyÃ¢s will partner up with the Boomer Esiason Foundation to raise money for a cure.

For more information on Mr. DennehyÃ¢s go to: www.mrdennehys.com

MR. DENNEHYâS TO HOST TEAM BOOMER - FIGHTING CYSTIC FIBROSIS POST- NYC

podcast@esiason.org — Fri, 27 Oct 2006 11:34:00 -0700

MR. DENNEHYÃ¢S TO HOST TEAM BOOMER - FIGHTING CYSTIC FIBROSIS POST- NYC MARATHON BENEFIT

- On Sunday, November 5 from 7:00 PM to 9:00 PM, Mr. DennehyÃ¢s located at 63 Carmine Street @ Seventh Avenue in New York CityÃ¢s West Village will host a post-marathon celebration to benefit Team Boomer- Fighting Cystic Fibrosis.

- The event is open to the public and ticket price is $25, which includes a two-hour open bar. All proceeds from the evening will go directly to the Boomer Esiason Foundation (BEF) to support the Exercise for Life Scholarship for individuals with cystic fibrosis.

- Joe Kelly, an employee at Mr. DennehyÃ¢s, will be representing TEAM BOOMER in the marathon along with many other international runners.

- Team Boomer Ã¢ Fighting Cystic Fibrosis was developed by BEF and is a USATF-registered competitive club.

- Those who are a part of Team Boomer participate in various races, obtain sponsors, and donate the pledges they receive to BEF. Team Boomer is designed to promote exercise and help raise funds for the Exercise for Life scholarship program for people with CF.

- BEF is a leader in the area of academic scholarships and transplant grants and is now being proactive as the frontrunner in the area of exercise for individuals with CF.

- Mr. DennehyÃ¢s, located at 63 Carmine Street at Seventh Avenue, is a traditional Irish pub and restaurant known for its live music, great food and charming bartenders.

- Mr. DennehyÃ¢s has received rave reviews from Time Out New York, New York Magazine and CitiSearch and is a New York pub thatÃ¢s not to miss.

For more info:

o Call: 212-414-1223

o www.mrdennehys.com

o donal@mrdennehys.com

Episode #0041: Isabel Stenzel-Byrnes Interview

podcast@esiason.org — Fri, 13 Oct 2006 16:08:00 -0700

Isabel Stenzel Byrnes Interview

The Power of Two - a family story of twins Isabel and Anabel surviving with CF

Jerry Cahill interviews part time social worker, Isabel Stanzel Byrnes, who is 34 years old with CF post transplant 2.5 years (Isabel received the gift of life on February 6th 2004). Isabel has an identical twin sister, Anabel Stenzel, who also has CF and is post transplant 6 years.

Isabel grew up in Los Angeles, California
Diagnosed 3 days post birth
At age 5 started having a lot of respiratory infections
Isabel started having chronic pseudomonas at age 10
Attended Stanford University undergraduate school
Attended University of California, Berkeley graduate school
Isabel and Ana lived in Japan and taught English for a few years
Isabel has always been active in the area of exercise pre and post transplant and is an avid hiker.
Isabel has been married for 8 years to a wonderful man and support person, Andrew Byrnes.
"The transplant was a spiritual event" states Isabel.
"I survived with CF and the transplant due to all my exercise, I had a lot of muscle strength"states Isabel.
Isabel has competed in the United States Transplant Games that includes over 1800 athletes. Isabel won 1 gold and 2 silver medals!!
Isabel and Anabel have written a book: The Power of Two. A family story about twins surviving with cystic fibrosis.
For information on the book please contact Isabel at: isabear27@hotmail.com

CF Education Day comes to NYC

Mon, 02 Oct 2006 19:04:00 -0700

Title: CF Education Day comes to NYC

When: October 15th 2006 from 11am to 4pm

Where: The Yale Club in New York City

Info: cfday2006@aol.com

Phone: 800-622-0385

Come hear nationally recognized speakers at this one time event.
The event is free and includes lunch
Everyone must register to attend
Speakers will discuss:
o   ways to obtain health insurance and make it cover treatments needed to fight CF
o   Laws that protect children with CF in school
o   Strategies for living a successful life with CF
o   New drugs on the CF Horizon
o   Treatments and care of children and adults with CF

Due to cross infection no one with CF can attend this event.
To find out other ways adults with CF can participate in this event please contact: cfday2006@aol.com or call: 800-622-0385

Running With Team Boomer

podcast@esiason.org — Thu, 28 Sep 2006 12:45:00 -0700

TEAM BOOMER Ã¢ FIGHTING CYSTIC FIBROSIS
USA Track & Field Club #06-1114

Millions of people worldwide are marathon runnersÃ¢
Millions of people worldwide jog, bike, swim, and exerciseÃ¢
Some people jog to stay in shapeÃ¢
People with cystic fibrosis jog to BREATHE!

Because I have cystic fibrosis I want to prove that I can breathe.
-Jerry Cahill/Age 50 Cystic Fibrosis Podcast

Team Boomer Ã¢ Fighting Cystic Fibrosis was developed by the Boomer Esiason Foundation (BEF) and is a USATF-registered competitive club. BEF is a leader in the area of academic scholarships and transplant grants and is now being proactive as the frontrunner in the area of exercise for individuals with cystic fibrosis (CF). Team Boomer is designed to promote exercise and help raise funds for the Exercise for Life scholarship program for people with CF, which helps them pursue their academic dreams.

As an athlete, Boomer Esiason knows how important exercise is for improving health, especially for those with cystic fibrosis. Participating in sports and physical activity helps increase the quality of life and health, and teaches discipline. Like athletesÃ¢ dedication and daily regiments on the playing field, CF patients must be compliant to daily therapy and medication routines. Your lungs are muscles and need to be worked to keep them clear and strong Ã¢ exercise should be part of EVERYONEÃ¢S daily routine. Team BoomerÃ¢s goal is to improve the quality of life and increase the lifespan of individuals with CF through the power of daily physical exercise.

By sponsoring an athlete, you are helping the Boomer Esiason Foundation and Team Boomer raise money for the Exercise for Life Scholarship.

Join Team Boomer Today

Team Boomer Donor Sheet

Team Boomer Pledge Sheet

Team Boomer Sponsor Sheet

Episode #0040 CF Roundtable Gives Back to the Cystic Fibrosis Community

podcast@esiason.org — Thu, 31 Aug 2006 17:17:00 -0700

Title: CF Roundtable gives back to the cystic fibrosis community

CF Roundtable is a newsletter for adults who have cystic fibrosis is published by United States Adult Cystic Fibrosis Association, Inc. (USACFA). Roundtable, now known as CF Roundtable, was founded in 1989 by an individual with CF, Lisa McDonough. CF Roundtable is an educational newsletter.

Jerry Cahill interviews Board members of USACFA; Paul Feld (49 with CF post transplant 19 months), Cynthia Dunafon (42 with CF), Laura Tillman (58 with CF) and Kathy Russell (62 with CF)

CF Roundtable/USACFA is a independent, 501 c (3) tax exempt, non-profit organization whose Board of Directors all have CF.

CF Roundtable is published quarterly with over 1500 subscribers and available for $10.00/year. The newsletter is over 40 pages with color pictures and 75% consists of personal stories and a column by a medical professional

Web site: www.cfroundtable.com or via phone: 503-669-3561

Topics include: Being a parent, transplant, parents of newly diagnosed, when to tell employers, and insurance issues Ã¢ to name a fewÃ¢

Board members comments on Ã¢why they do the newsletter?Ã¢?

Cynthia: Ã¢give back to the CF CommunityÃ¢?
Paul: Ã¢offer my life experiences post transplant and make a differenceÃ¢?
Kathy: Ã¢fun and educationÃ¢?
Laura: Ã¢contribute to CF societyÃ¢?

Episode #0039 Understanding CF Lung Therapies

podcast@esiason.org — Tue, 25 Jul 2006 14:02:00 -0700

TITLE: Understanding CF Lung Therapies

Dr. Joan DeCelie-Germana, director of the CF Center at Schneider ChildrenÃ¢s Hospital in New Hyde Park, New York, and assistant professor of pediatrics at the Albert Einstein College of Medicine in the Bronx, New York discusses the importance in maintaining a consistent daily treatment regimen to manage lung disease.

Ã‚ With the help of todayÃ¢s CF lung therapies, CF patients are now living longer and more active lives than ever before.
Ã‚ Pulmonary treatments, especially the standard therapies, are critical to helping CF patients stay as healthy as possible.
Ã‚ For optimum health, itÃ¢s important to adhere to a doctor-recommended treatment schedule each day, and to take the treatments in the right order.
Ã‚ A recommended order of daily treatment for a CF patient is Bronchodialator, PulmozymeÃ‚ (dornase alfa), The Vest or similar chest wall oscillator, and then TOBIÃ‚ (tobramycin solution for inhalation), but your doctor will recommend the treatment schedule thatÃ¢s right for you. Add-on therapies such as hypertonic saline may be appropriate for certain patient populations.
Ã‚ Getting regular physical exercise and following a nutritious, high-calorie diet are also important for maintaining good health.

CFRI TEEN & ADULT DAY RETREAT

podcast@esiason.org — Mon, 24 Jul 2006 12:33:00 -0700

Title: CFRI TEEN & ADULT DAY RETREAT

The CFRI Retreat is August 6th and 11th in Menlo Park, California for teens, 15-18 years and adults with cystic fibrosis, their family members and health care providers. The event is fun, educational and a safe environment to meet some great friends!

The retreat provides a safe and welcoming environment aimed at enhancing positive coping skills, social support and education for people who share common experiences with CF.

Activities include daily exercise, arts & crafts, rap sessions, and educational workshops with guest speakers.

Cost is $65 per person for entire week.

Scholarships available.

Safety is a top priority: ALL people with CF are required to comply with cross infection behavioral precautions. A medical advisor is available at all times, and volunteers are available to assist with respiratory treatments.

For more info: http://www.cfri.org/home2.html

Episode #0038 Emily Schaller Interview

podcast@esiason.org — Thu, 06 Jul 2006 12:39:00 -0700

Title: Emily Schaller Ã¢Rocks CFÃ¢? through rock & roll musicÃ¢

1. Emily Schaller is 24 years old with cystic fibrosis and living in Detroit, Michigan. Emily believes her goal in life is to Ã¢spread awarenessÃ¢? about cystic fibrosis and is doing so in her rock and roll band. www.letsrockcf.org .Emily was diagnosed at 18 months
2. Ã¢I attended CF camps when I was younger but they were shut down due to cross contaminationÃ¢ so now people with CF go to cystic fibrosis chat roomsÃ¢? states Emily.
3. Ã¢Time managementÃ¢? is EmilyÃ¢s biggest challenge due to all the therapy compliance.
4. Emily is allergic to most medications therefore needs to be in hospital for iv antibiotics vs. home care.
5. EmilyÃ¢s passions include rock & roll and Broadway shows.
6. Activities such as drumming and jogging help keep Emily healthy.
7. Emily is a drummer in a rock & roll band called Ã¢HELLENÃ¢? and her brother Jason is also in a band called Ã¢SOUTH NORMALÃ¢?.
8. Detroit Rocks CF is a group of 12 local bands that play music for a worldly cause and have a benefit for CF called Ã¢Just Let Me BreathÃ¢?
9. LetÃ¢s Rock CF music cd available at: www.letsrockcf.com.
10. Ã¢Keep goingÃ¢ stay activeÃ¢ play in a band or play sportsÃ¢ and live your life to the fullestÃ¢Ã¢? EmilyÃ¢s advice to others with CF.

Living - Breathing - Proof

podcast@esiason.org — Mon, 26 Jun 2006 13:43:00 -0700

Living Breathing Proof

Celebrating my 50th Birthday !

Remember - Compliance, Nutrition, Exercise and Determination are the keys to having a great quality of life with cystic fibrosis

Exercise For Life CF Athletic Scholarship

podcast@esiason.org — Fri, 23 Jun 2006 08:34:00 -0700

Exercise For Life CF Athletic Scholarship

Presented by the Boomer Esiason Foundation

Details Coming Soon!

Episode #0037: Schneider Children's Hospital of North Shore LIJ Health Systems CF Nurses

podcast@esiason.org — Sun, 18 Jun 2006 09:55:00 -0700

Schneider ChildrenÃ¢s Hospital of North Shore LIJ Health Systems CF Nurses

Title:

CF Nurses Ã¢embrace patients and familyÃ¢? and form a Ã¢partnershipÃ¢?

Jerry Cahill interviews CF nurses, Lynn Bonitz and Susan Galvin, from Schneider ChildrenÃ¢s Hospital of North Shore LIJ Health Systems in New Hyde Park, New York. Lynn and Susan have over 22 years of experience in nursing (12 in the world of cystic fibrosis) and maintain a Ã¢positive attitudeÃ¢?.

Lynn and Susan are part of a phenomenal Ã¢TEAMÃ¢? at the large CF Center at Schneider ChildrenÃ¢s of North Shore LIJ Health Systems that has over 200 pediatric patients and over 80 adult CF patients.
A typical day in the life of a CF nurse: Ã¢we spend Ã‚ of the day seeing patients in clinic followed by team meetings, phone triage, insurance issues, clinical studies, and involvement in emergency casesÃ¢? states Lynn and Susan.
Ã¢What I like most about the job is working with the patients and their familiesÃ¢? states Lynn
Ã¢The patients are always positive and very resilientÃ¢? states Susan.
Challenges with infants: Ã¢the educational process for the family it is a long-term processÃ¢? states Lynn
Challenges with adolescents: Ã¢having patients take control of their care and NOT abandoning careÃ¢? states Susan.
Challenges with adults: Ã¢ Learning to maintain a balance in lifeÃ¢?
Advice: Lynn and Susan both recommend that patients should have a case manager at their insurance company. Ã¢Case managers can make things go very smoothlyÃ¢?
Goal: Ã¢We strive to give the best care and help our patients in every way we can and not treat them like medical recordsÃ¢?

Episode 0036: Richie Keane Interview

podcast@esiason.org — Wed, 31 May 2006 13:11:00 -0700

Title: Richie Keane recommendation to all people with CF: Ã¢Stay ClearÃ¢?Ã¢

Jerry Cahill interviews Richie Keane who is 49 years old and Ã¢loving and respecting lifeÃ¢? Richie grew up in Long Island, NY and is one of 9 children (3 out of 9 have CF Ã¢ one sister Valerie passed away and Jen Davison is doing well and recently did a podcast)

- Richie grew up in Baldwin, NY.
- Diagnosed at birth Ã¢I was a purple babyÃ¢?
- Richie was very active growing up playing football, baseball, and golf.
- Ã¢I started getting sick around 18 years of age and had pancreas surgery at age 30Ã¢? states Richie.
- The biggest challenge Richie faces is that his breathing has gotten tougher, the complications that develop from CF, and all the time involved doing medications.
- Complications that Richie has experienced include: diabetes, pancreatitis, and osteoporosis (broke over 30 ribs)
- Richie states: Ã¢living with CF is tough but I love life and CF has taught me to respect lifeÃ¢?
- Richie has been married for 18 years to his wonderful wife Maryanne Ã¢ she is a Ã¢special personÃ¢? he states.
- Listed for a double lung transplant RichieÃ¢s dog Ã¢gets me off my buttÃ¢? and keeps him active prior to transplant.
- RichieÃ¢s advice: Ã¢keep your chin up, enjoy life, and take the time to get your lungs moving to keep them clearÃ¢?

Episode #0035: April Biggs Keeps on Dancing after Double Lung Transplant

podcast@esiason.org — Thu, 11 May 2006 11:00:00 -0700

Title: April Biggs Ã¢Keeps on DancingÃ¢? after Double Lung Transplant

April Biggs is 31 years old and received the gift of a double lung transplant on August 15th 2004 at New York Presbyterian Hospital in New York City.

-     April grew up in Jacksonville, Florida and was diagnosed with cystic fibrosis at one years old.

-     Growing up the doctors told her parents Ã¢Treat April like a healthy person and to live as fully as she canÃ¢?

-     April started dancing at 5 years of age and is still dancing and choreographing post transplant.

-     April attended Florida State University.

-     Ã¢CF causes a lot of alienation due to the fear of catching germs from others with cystic fibrosis and thatÃ¢s a dragÃ¢? states April

-     Ã¢People with CF have a strong will to live and usually do pretty well getting through lung transplantsÃ¢? states April

-     Ã¢My family is a GREAT support systemÃ¢? states April

-     AprilÃ¢s FEVÃ¢s dropped from 85% to 30% and had a lot of hemoptosis which expedited the need for a transplant.

-     AprilÃ¢s recommendation to anyone with CF and anyone facing a lung transplant: Ã¢exercise and if you canÃ¢t run, walk!Ã¢? alsoÃ¢ Ã¢live your life to the fullest and do it!Ã¢?

Episode #0034: CFRI - Cystic Fibrosis Research Inc.

podcast@esiason.org — Wed, 03 May 2006 12:17:00 -0700

Title: CFRI (Cystic Fibrosis Research Inc.) A great organization!

CFRI is a very caring and committed organization to cystic fibrosis

- CFRI started 31 years ago by parents of children with CF to give support and raise money locally on the west coast for research and to make a difference for people living with CF.

- Carroll Jenkins, Executive Director, states: CFRI is a small group of 4 people and a few volunteers that wear many hats.

- CFRI address: 2672 Bayshore Parkway, Mountain View CA 94043

- Phone: 650-404-9975

- http://www.cfri.org

- cfri@cfri.org

- Mission Statement: Cystic Fibrosis Research Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

- Carroll Jenkins states: We believe in the value of collaboration with other organizations for one cause, and each organization can build on each others strengths.

- CFRI does both educational and fundraising events

1.) 19^th Annual Educational Conference: August 4^th- 6^th, 2006, a three day event for adults with CF, caregivers, researchers, health care providers, family members, as well as the non-research community. Focus for this year's seminar: THE CYSTIC FIBROSIS JOURNEY: ALL AGES, ALL STAGES

2.) Teen/Adult Day Retreat: August 6^th - 11^th 2006, for individuals with CF and their significant other. The goal is education, support, and fun

3.) 22^nd Annual Golf Fundraising Tournament: August 7^th 2006 @ Cinnabar Hills Golf Club, San Jose CA.

4.) Mother's Day Tea: May 14^th 2006. Ãƒ Warmest appeal to connect people and the largest avenue of fundraising for CFRI. You can get more info and donate at: cfri@cfri.org or call: 650-404-9981

Carroll Jenkins states: I am honored to work with CF. People with CF are amazing, not only do people with CF appreciate and value life, they appreciate the moment.

Episode #0033 Bonnie Strangio Educational Scholarship

podcast@esiason.org — Mon, 17 Apr 2006 12:03:00 -0700

Bonnie Strangio $2500 Education Scholarship

Application Deadline: June 30, 2006

The Bonnie Strangio Education Scholarship was established in 2005 to honor the memory of Bonnie Strangio. The scholarship will be awarded to a person living with cystic fibrosis who, like Bonnie, has an upbeat personality and a "can-do" attitude and shows a tremendous passion for life in achieving their goals despite battling CF.

Bonnie loved life and everything in it. She appreciated family, friends, and people in general. She always offered a patient ear to listen to friends. Bonnie held a B.A. in Psychology and Masters in Teaching that took her down the career path of a special education teacher in a New Jersey high school where she focused on allowing learning disabled students to integrate in mainstream society. Strong, brave, and giving, she never felt sorry for herself but strove to make the best of everything. Everyone, young and old, loved her!

CRITERIA
An undergraduate or graduate student who has cystic fibrosis and whose service and commitment to the prevention and cure of cystic fibrosis is exemplary.

SELECTION PROCESS
- Candidate will complete an application.
- Candidate will submit all necessary documentation including:
- Essay on post graduation goals.
- Recent photo.
- Letter from physician confirming CF diagnosis.
- Most recent W2 form verification for both parents.
- Transcript (high school, college, or graduate).
- Letter of acceptance from academic institution.
- The committee will choose finalists who will be interviewed thereafter.
- The award recipient will be chosen by a majority vote.

SELECTION TIME PARAMETERS
Fall term

APPLICATION
Available at the Boomer Esiason Foundation web site: http://www.esiason.org

Available at: http://www.cfscholarships.com/bonnie_strangio_scholarship.html

CONTACT

Boomer Esiason Foundation
c/o Jerry Cahill
417 Fifth Avenue, 2nd Floor
New York, NY 10016
Phone: 646-344-3661
Fax: 646-344-3757

EMAIL QUESTIONS TO: jcahill@esiason.org

Episode 0032: Jennifer Davison Interview

podcast@esiason.org — Wed, 29 Mar 2006 15:31:00 -0800

NO LIMITS!!!!

Jerry Cahill interviews Jennifer Davison who is 37 years old and living strong, succeeding and NOT letting cystic fibrosis get in her way. Jennifer grew up in Long Island, New York and is a registered nurse at Long Island Jewish/North Shore Medical Center.

1. Jennifer is one of 9 children, 3 with CF.
2. Jennifer attended Fashion Institute of Technology (FIT) and after working in the fashion industry decided to focus her career in the health field of nursing
3. Married to Tim and with a beautiful daughter Ã¢ Dara Ã¢ Jennifer Ã¢juggles 3 jobs - career, family, and healthÃ¢?
Ã¢I was treated NORMAL growing up Ã¢ with a big family there was no time to feeling sorry for yourselfÃ¢? states
4. Jennifer Ã¢we just got off our butt and livedÃ¢?
5. JenniferÃ¢s first hospitalization came at age 17 years old.
6. Ã¢Being active is the key to good quality of life Ã¢ I ski, play racquetball and ride my bikeÃ¢? states Jennifer.
7. Jennifer states: Ã¢CF is part of who I am but does not define meÃ¢?
8. Ã¢CF does NOT stop me from living Ã¢ I just get out there and LIVEÃ¢?
9. Jennifer recommends that ALL people with CF should Ã¢get up at out and enjoy life and do not put restrictions on yourselfÃ¢?

Episode 0031: 2006 Boomer Esiason Foundation Booming Celebration

podcast@esiason.org — Mon, 13 Mar 2006 18:54:00 -0800

On March 11, 2006 the Boomer Esiason Foundation held it's 13th Annual Booming Celebration. The Booming Celebration is one of the largest single event cystic fibrosis fundraiser in the USA with over $3,000,000 raised to help fund CF research in one night. Congratulations to Steven M. Bowman 2006 Boomer Esiason Foundation Most Valuable Player.

Episode #0030: 2005 Sacks For CF Scholarship Winners

podcast@esiason.org — Thu, 09 Mar 2006 12:18:00 -0800

Sacks for CF Scholarship Program 2005 Winners

Sacks for CF will award scholarships to the following 15 people with CF who are striving for therapy adherence and academic success.

Name	City	College
John Anthony	Erie, PA	Mercyhurst College
Bailey Broadbent	Canton, OH	Kent State
April Christensen	Parker, SD	University of Nebraska
Keith Connolly	Cincinnati, OH	Xavier University
Jessica Coulter	Winston-Salem, NC	Salem College
Nicole Ellis	Islamorada, FL	Stetson University
Phillip Fett	Dripping Springs, TX	Saint Edward's University
Michelle Green	Medina, OH	Ohio State University
Philip Griffin	Pottsville, PA	Embry Riddle Aeronautical
Erin Keitges	Allen, NE	Morningside College
John Meadows	Pickerington, OH	University of Cincinnati
Charlotte Reardon	Olney, MD	University of Rochester
Kristina Swecker	Cleveland, WV	West Virginia Wesleyan
Jessica Weiner	Amherst, MA	Mount Holyoke College
Matthew Weinshenker	Manalapan, NJ	Rider University

Sacks for CF is a scholarship program funded by CHIRON CORP. the makers of TOBI for inhalation.

Congratulations on a job well done!!!

Episode #0029: iPod Video- Exercise For Life

podcast@esiason.org — Tue, 28 Feb 2006 02:33:00 -0800

TITLE: Exercise for Life

Jerry Cahill, 49 with cystic fibrosis, discusses the importance of exercise and explains the Ã¢gadgetsÃ¢? he uses while jogging.

1. Ã¢The single most important therapy in my life that keeps me healthy is exerciseÃ¢? states Jerry

2. Jerry believes that being outdoors in the fresh air is much better than being locked inside on a treadmill

3. Ã¢I try to exercise outdoors even when I am on IV antibiotics as it helps clear out my congestionÃ¢?
Jerry jogs with a small oxygen tank, prescribed by his doctor due to shortness of breath. I use a Ã¢camelbakÃ¢? backpack that is normally used by bikers for hydration. http://www.camelbak.com

4. Ã¢I believe in training smart so I use a Polar Heart Rate Monitor to time my walking/jogging and keep track of my heart rate and exercise training zones. http://www.polarusa.com

5. Ã¢When I exercise I need to wear an oximeter that measures the oxygen saturation in your blood since my oxygen levels sometimes drop below 90%. The oximeter (WristOx 3100) keeps me in check so I do not hurt myself and get the full benefit of exercising my lungs, which are muscles and need to be workedÃ¢? http://www.nonin.com

6. Ã¢I have been exercising and jogging since I was 9 years old and it has improved my quality of life living with CF. I believe everyone with CF can and should do some form of exercise daily Ã¢ even if you start with walking and build up to joggingÃ¢Ã¢?

Episode #0028 Detroit Rocks Cystic Fibrosis !

podcast@esiason.org — Tue, 21 Feb 2006 14:28:00 -0800

Detroit Rocks Cystic Fibrosis !

Detroit Rocks CF is the first album put out by the Detroit run Rock CF Foundation. The CD features twelve of Detroit's finest rock bands. Each band donated one track to the album that will sell for $10. with all proceeds going to the Cystic Fibrosis Foundation.

1. The album will officially be released at this years Just Let Me Breathe benefit for Cystic Fibrosis.
2. This year's benefit show will be Friday, February 24th 2006 at the Royal Oak Music Theatre in Royal Oak, Michigan.
3. The idea for Detroit Rocks CF was thought of by Emily Schaller, drummer for the band Hellen.
4. Emily, 24, has cystic fibrosis, a genetic disorder that affects 30,000 Americans
5. Emily states: "The thought of bringing a dozen of the best Detroit bands together on one CD all in the name of CF is amazing! It means so much to me that the people of Detroit care and are willing to help such a great cause."
6. Visit www.letsrockcf.org for more information and to order a copy of the CD

New Logo - CF Podcast

podcast@esiason.org — Thu, 16 Feb 2006 14:55:00 -0800

Hey everyone, Stacey Wu just completed my new logo

Thanks, Stacey!

Episode #0027 Charlotte Reardon Interview

podcast@esiason.org — Tue, 14 Feb 2006 16:19:00 -0800

Title: Reardon Runs With CF Ã¢ Not From It!

Jerry Cahill interviews Charlotte Reardon and states Ã¢ I enjoyed meeting Charlotte Ã¢ she is a selfless young woman that is full of passion and hopeÃ¢?

Charlotte is 20 years old with cystic fibrosis and is Living, Breathing and Running to stay healthy. Currently attending the University of Rochester in Rochester, NY and studying psychology in Austria for the spring semester.

1.    Charlotte grew up in Olney, Maryland and was diagnosed at 2 weeks of age and has 3 sisters.
2.    In the hospital a lot for iv antibiotic therapy during grade school, Charlotte also had a feeding tube inserted in 7th     grade.
3.    After some of her CF clinic friends died Ã¢ Charlotte decided to Ã¢take control of her diseaseÃ¢?
4.    Ã¢Exercise is my main form of therapyÃ¢? states Charlotte.
5.    Ms. Reardon attributes her success to her father, John Reardon, who first pushed her into running.
6.    Ã¢In all honesty IÃ¢m kind of in denial,Ã¢? states Charlotte. Ã¢I like to think of myself as someone whoÃ¢s healthy. I have CF, but at the same time I am determined to do anything I want to doÃ¢?
7.    Ã¢CF is a cross in life but it made me tough!Ã¢? states Charlotte.
8.    Charlotte believes Ã¢Doctors need to stress exercise to their CF patients and everyone with CF needs to get out there and do somethingÃ¢?
9.    Ã¢Breathing [while running] is harder for me than it is for other people, Reardon said. But the more running I do, the easier I can breathe and the better I feel.Ã¢?
10.    CharlotteÃ¢s advice to others with CF Ã¢DonÃ¢t let it stop you Ã¢ just get out there and live!Ã¢?

Heroes of Hope Award - Living With CF

podcast@esiason.org — Mon, 06 Feb 2006 15:00:00 -0800

Pictured on Right (Left to Right) Jerry Cahill with Lisa Yourman, Dr. Joan Germana and Boomer Esiason.

Heroes of Hope Award Photo Gallery

share.shutterfly.com/action/welcome?sid=8AbOW7Fq4buXFg

This Story appeared in Heroes of Hope Blog...

Heroes of Hope Ã¢ Living with CF

49-Year-Old Brooklyn, New York Resident with Cystic Fibrosis Receives National Award

The Heroes of Hope TM Living with CF Program Advisory Panel is pleased to announce Jerry Cahill as the January 2006 award recipient in recognition of his positive attitude and tenacious spirit, The Heroes of Hope program honors people with cystic fibrosis (CF) who give hope to others. Jerry was chosen from a nationwide pool of candidates for his ability to inspire others with CF through his positive attitude, commitment to proactively manage his health, determination, community outreach, and achievement.

Jerry states:
Ã¢I wanted to thank the Heroes of Hope Committee and Genentech Ã¢ makers of Pulmozyme Ã¢ for this honorÃ¢?

Ã¢I also wanted to thank my family, friends, doctors, and the Boomer Esiason Foundation for ALL your supportÃ¢?

Ã¢I share this award with every person with cystic fibrosis that is living, breathing, and fighting everyday to win the battle with this diseaseÃ¢?

For questions regarding the Heroes of Hope Ã¢ Living with CF program, please call 1-866-288-1893
Or visit the web site: http://www.pulmozyme.com/hoh/hoh_landing.jsp

Jerry's Speech

HEROES OF HOPE (Living with CF)

I wanted to thank the HEROES OF HOPE Committee and Genentech Ã¢ makers of Pulmozyme - for this honorÃ¢

I also wanted to thank my family & friends, doctors, and the Boomer Esiason Foundation for all your supportÃ¢

In the past I have received awards for pole vaulting over 16Ã¢0Ã¢? and increasing sales volume from $26M to $29M but it is a little eye-opening to get an award related to Ã¢living with a diseaseÃ¢?Ã¢ so I thought about it and looked up the definition of Ã¢HEROÃ¢? in my WebsterÃ¢s pocket dictionary.

Hero Ã¢ one that is much admired or shows great courage.

This award needs to be shared with manyÃ¢

1.) I share this with every person with cystic fibrosis that is living, breathing, and fighting for survival as it takes a lot of courage & work both physically and emotionally.

2.) My family, in particular my MOM, they are all heroes as they had to deal with a lot on a daily basis growing upÃ¢I remember being diagnosed at age 11 and the doctors telling my parents Ã¢you are lucky if your son lives to be 18 years oldÃ¢?, WELLÃ¢ I am 49 and still here today and donÃ¢t plan on loosing the battle with CF any day soon. I owe a lot to my family because they never put me in a bubble and kept me very involved in sports Ã¢ I thank youÃ¢

3.) My sister Laurie and friend Mike who help me out alot when I need extra physical therapy when I am sick and really should be in the hospital Ã¢ thank you

4.) My doctorsÃ¢ I had and have many Ã¢ one past away, one retired, and some never partnered up with me so I moved on

Dr. Schulman, who I have been with for over 7 years - he has been a great partner and deals with a lot of issues Ã¢ he has his hands full with me as I am not an easy patient Ã¢ I thank you, itÃ¢s a delight working with you as a doctor Ã¢ I consider you a friend

5.) The Boomer Esiason Foundation for your support and giving me a Ã¢safe havenÃ¢? by letting me volunteer and empowering me as I await a Lung transplant.

That leads me to the definition of HOPE...

HOPE Ã¢ desire with expectation of fulfillment

In receiving this award, my hope is that PARENTS of children with CF will NOT feel guilty and NOT cover their loved one in bubble wrap but let them live life to the fullest!

And for individuals living with CF my hope is that ALL will be very compliant to there medications/therapies and get involved in VIGOROUS EXERCISE on a daily basis.

I believe, that through daily exercise, everyone with cystic fibrosis will be LIVING, BREATHING PROOF that can have a full and productive life while we wait for a cure.

THANK YOU

Sacks For CF Application (PDF)

podcast@esiason.org — Wed, 25 Jan 2006 16:13:00 -0800

Episode #0026: Sacks For CF Scholarship Program

podcast@esiason.org — Wed, 25 Jan 2006 15:46:00 -0800

Sacks for CF Scholarship Program

Sacks for CF is a scholarship program funded by CHIRON CORP. Ã¢ the manufacturers of TOBIÃ‚ for inhalation.
Jerry states: Ã¢TOBIÃ‚ has made a major impact on treating respiratory infections and has given me a better quality of lifeÃ¢?
CHIRON CORP has given a charitable grant of over $170,000. To the Boomer Esiason Foundation Grant Program.
Sacks for CF will award 15 scholarships to people with CF who strive for therapy adherence and academic success.
Scholarship details and applications are available at: www.sacksforcf.com

More information is available by visiting the Boomer Esiason web site: www.esiason.org
Deadline for ALL applications: Friday, February 24th 2006
Winners announced: Friday, March 10th 2006

Daily Source Code Promo

podcast@esiason.org — Wed, 18 Jan 2006 11:59:00 -0800

Episode #0025 Alison Cain Podcast

podcast@esiason.org — Tue, 10 Jan 2006 11:52:00 -0800

Alison Cain Podcast

Title:
Allison Cain can finally breathe after transplant and no more Ã¢CF boot campÃ¢?

Jerry Cahill interviews Alison Cain who is 34 years old and had a double lung transplant at New York Presbyterian Hospital in NYC 1 Ã‚ years ago due to progression of cystic fibrosis. Alison grew up in Connecticut and has returned to work teaching high school Spanish.

- Alison was diagnosed at 1 Ã‚ years of age due to a Ã¢strange coughÃ¢? and Ã¢failure to thriveÃ¢?
- Alison attended Fordham University in New York.
- Sports kept Alison healthy for a long time prior to transplant: Ã¢I was a competitive swimmer from age 4 to 13 years of age. I also played soccer, softball, and ran cross country trackÃ¢?
- Alison was never hospitalized for cystic fibrosis until the age of 19.
- At age 28 Alison developed CF related diabetes.
- June 16, 2004 Alison had a double lung transplant that lasted 6 hours and was hospitalized for 10 days.
- Alison believes, after many years of battling CF, that a transplant is the only true cure for CF and that her life is so much happier now.
- AlisonÃ¢s advice: Ã¢Be compliant to therapy/med.Ã¢s and donÃ¢t give up hope.

Merry Christmas

podcast@esiason.org — Sat, 24 Dec 2005 09:12:00 -0800

It's people like you that make life so special... Wishing ALL moments of pure happiness, health, and love this holiday season

Holiday Photo Album

Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference

podcast@esiason.org — Fri, 23 Dec 2005 17:17:00 -0800

Laurie McDonald Podcast

Title:
Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference

Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical Center in Chapel Hill, North Carolina. Laurie works closely with the medical team, patient, and family to make sure everything runs smoothly with the transplant.

Laurie is involved in lung, heart, liver, and kidney transplant social work.
Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC.
Ã¢Financial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and familyÃ¢? states Laurie
UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release.
Laurie recommends setting up a Ã¢fundraising teamÃ¢? ASAP once you are listed to help ease the financial burden of unexpected expenses.
LaurieÃ¢s advice:
1. Ã¢Live everyday /minute of your life and donÃ¢t count on transplant to turn your life aroundÃ¢?
2. Ã¢Prepare FinanciallyÃ¢?
3. Ã¢Exercise Ã¢ the surgery and recovery will go smootherÃ¢?

Al Iannello Gives the âGift of Breathâ? this Holiday Season

podcast@esiason.org — Wed, 14 Dec 2005 09:19:00 -0800

Al Iannello Gives the Ã¢Gift of BreathÃ¢? this Holiday Season

Jerry Cahill interviews Al Iannello.

Al is 41 years old with cystic fibrosis and another adult Ã¢living, breathing, and succeeding with CF. Al Iannello recently donated a therapy vest to another individual in need with CF.

* Al Iannello was diagnosed at birth after he Ã¢died at birthÃ¢?
* Al has 1 brother and 2 sisters and his older sister also has CF and is 48 years old
* Growing up Al was very involved in baseball, football, and basketball.
* Al states: Ã¢ I just deal with my condition and live a normal lifeÃ¢?
* Ã¢I come from a very close family and they ALWAYS are by my sideÃ¢?
* Al is always positive and a fighter - Ã¢having CF is not the end of the worldÃ¢?
* Ã¢DonÃ¢t live in the North Pole and be isolated, you should be part of and get involved in the communityÃ¢? states Al Iannello.
* AlÃ¢s recommendation: Ã¢Do what you have to do to stay healthy and move forward in life!Ã¢?

Scott Johnson: The Tri-Athlete

podcast@esiason.org — Mon, 28 Nov 2005 12:02:00 -0800

Scott Johnson: The Tri-Athlete (swim, bike, run)

Jerry Cahill interviews Scott Johnson about training for an Ã¢IronmanÃ¢? Triathlon

Scott Johnson at age 33 has been living with CF, living 4 years out with a double lung transplant, and now living with the accomplishment of competing in over 18 triathlons.

Scott recently competed in the FLORIDA IRONMAN Ã¢ the most elite of triathlon competitions Ã¢ on November 5th in Panama City, Florida.

IRONMAN Triathlon consists of swimming 2.4 miles, biking 112 miles, and finishing with a 26.2 mile run
Scott states: Ã¢Prior to my transplant, I made a list of things IÃ¢d like to accomplish and a triathlon was one of my wishesÃ¢?
Ã¢One year after my double lung transplant I started training hardÃ¢?
Scott is sponsored by the Wilmington YMCA
Scott trains 6 days a week for a total of 30 hours.
Additional nutritional supplements include pre-natal vitamins and protein shakes.
Ã¢Life is precious and I am living it to the fullestÃ¢? states Scott

Scott Johnson: The Double Lung Transplant (Part II)

podcast@esiason.org — Mon, 14 Nov 2005 09:03:00 -0800

Scott Johnson: The Double Lung Transplant (Part II)

Jerry Cahill interviews Scott Johnson about his double lung transplant

Scott Johnson is 33 years old with cystic fibrosis and had a double lung transplant 4 years ago on September 15th 2001 at University North Carolina Medical Center in Chapel Hill, North Carolina.

Scott grew up in Jacksonville, North Carolina
At 27 years old with a sinus infection ScottÃ¢s lung x-rays looked like a Ã¢blizzardÃ¢?
Scott was listed for 2 years, the surgery was 9 hours, and he was hospitalized for 17 days.
Scott prepared for the transplant by exercising on a treadmill and weights and going to support groups.
Ã¢Exercise and a Positive AttitudeÃ¢? helped Scott make it through the surgery
Scott states: Ã¢My quality of life with my new lungs is better than living with CFÃ¢?.
Scott words of encouragement for others listed for a transplant: Ã¢Maintain a positive outlook and keep exercising!Ã¢?

Scott Johnson: Growing up with CF (Part I)

podcast@esiason.org — Fri, 04 Nov 2005 11:32:00 -0800

Scott Johnson: Growing up with CF (part 1)

Jerry Cahill interviews Scott Johnson in 3 parts:
1. Growing up with CF
2. The Double Lung Transplant
3. The Triathlete

Scott Johnson is 33 years old with cystic fibrosis and training hard in sports regardless of the fact that he has CF and underwent a double lung transplant 4 years ago at UNC Chapel Hill, North Carolina.

Scott grew up in Jacksonville, North Carolina
Diagnosed with CF at 2 months due to pneumonia and a lung collapsing
Scott was always embarrassed about hi coughing growing up but still was very involved in sports.
Scott states: Ã¢CF has shaped and played a MOJOR role in my life growing up Ã¢ people with CF donÃ¢t make plans for the futureÃ¢Ã¢?
Ã¢Exercise and a Positive AttitudeÃ¢? these are ScottÃ¢s most important factors to maintaining ScottÃ¢s health.
Scott states: Ã¢The biggest challenges facing adults with CF is insurance and medical expenses as people are living a lot longer with cystic fibrosisÃ¢?
Scott believes, Ã¢you have to own it and manage your CFÃ¢?
Ã¢I have CF but it does NOT have meÃ¢

National Transplant Assistance Fund â âThe Financial Link to Transplantation

podcast@esiason.org — Fri, 21 Oct 2005 10:02:00 -0700

National Transplant Assistance Fund -The Financial Link to Transplantation

Jerry Cahill interviews Lynne Samson, the Executive Director of the NTAF on how they can help with fundraising for a costly lung transplant.

Mission Statement: To help raise funds for transplant and catastrophic injury patients by providing compassionate support, education and expertise to them, their families and communities.

NTAF is a nonprofit 501 (c) 3 charitable organization and contributions to NTAF are tax-deductible. NTAF was founded in 1983
Lynne states: "it's better to start fundraising as soon as you are listed at a transplant center"
Lynn states: "people in the community love to support a cause and this gives emotional support to the patient and family going through the crisis"
Fundraising events include: golf outings, spaghetti dinners, chicken fries, dances, and car washes, to name a few.
Money can be used for insurance co-pays, medications, re-locating for a transplant, meals, lodging, and living donor costs.
NTAF has over 1200 active patient accounts and has risen over $4 million this year.
"The goal of NTAF is to help the patient and family feel financially, emotionally, and mentally secure and that through the community support they will feel cared for"

National Transplant Assistance Fund

Jump Drive Template - CF Patients can get a Medical Jump Drive from the Boomer Esiason Foundation

podcast@esiason.org — Fri, 14 Oct 2005 10:24:00 -0700

Medical Information Template for your Jump Drive

âJump Driveâ? for Better Health Care

podcast@esiason.org — Thu, 06 Oct 2005 10:32:00 -0700

Ã¢Jump DriveÃ¢? for Better Health Care

Jerry Cahill interviews Dr. Jamie Wells on putting medical information on a Ã¢jump driveÃ¢?

"Jump DriveÃ¢?: also know as a USB drive or flash drive is a Ã¢plug-and-playÃ¢? portable storage device that is lightweight enough to attach to a key chain that cost under $20.
Dr. Wells states: Ã¢jump drives empowers us in our health care and enables patients to be their own advocates
Medical information & records can be stored on a Ã¢jump driveÃ¢? and this is extremely important to someone with a chronic disease or medical condition for doctor visits and emergency room visits.
Ã¢Jump DrivesÃ¢? contain such information as emergency contacts, physicians contacts, past medical history, allergies/adverse effects, current medications, and laboratory test information.
The BOOMER ESIASON FOUNDATION will be putting a Ã¢Jump DriveÃ¢? Medical Template up on their site (www.esiason.org) and offering the drives to individuals with CF with proper documentation.

The âPod Daddyâ? wants to hear your comments on the Cystic Fibrosis Podcast

podcast@esiason.org — Wed, 21 Sep 2005 09:49:00 -0700

The Ã¢Pod DaddyÃ¢? wants to hear your comments on the Cystic Fibrosis Podcast.

Please click on comments or email me at jcahill@esiason.org and let me know your thoughts and what you want to hear more about.

Recent comments:

I really love the podcasts! These things are exactly what kids and young adults with CF need to see and hear. I canÃ¢t tell you how often I fell alone in my fight with CF. Your site, I think, is out there to give the same support that I found in my family. This site has so much hope in it! (Ohio)

I really like your site Ã¢ itÃ¢s very informative. (Louisiana)

I am impressed with the podcasts and would like to hear more about CF individuals with digestive, kidney, and liver issues.

I found the podcasts Ã¢fascinatingÃ¢? It was wonderful to listen to the inspirational stories of others LIVING with cystic fibrosis. I found it incredible how open and honest the people you interviewed were.

Ã¢WOW!Ã¢?

Dylan Mortimer, at 25

podcast@esiason.org — Thu, 08 Sep 2005 10:04:00 -0700

Dylan Mortimer, at 25 "Keeps the Faith",in Battling CF and Focuses on Being an Artist and Graduate School

Jerry Cahill interviews Dylan Mortimer

* Diagnosed at 6 months of age in St. Louis
* Dylan also has a 23 year old brother with cystic fibrosis
* Growing up Dylan had a cough and was not hospitalized for a "tune up" until age 17.
* Dylan exercises at a gym doing the treadmill and weight training
* Dylan moved to NYC about a year ago and is attending the School of Visual Arts Graduate School and got married in May 2005
A newlywed Dylan believes "Love transcends all, even cystic fibrosis"
* "Although living with CF brings a lot more baggage and weighs you down, it makes you appreciate life "states Dylan.
* Dylan states: "My Faith in God helps me accept CF and gives me the energy to fight the battle"

Newsweek Article on Living into Adulthood

podcast@esiason.org — Tue, 06 Sep 2005 11:24:00 -0700

Check out the September 12th issue of NEWSWEEK (page 64). There is an article about people with CYSTIC FIBROSIS who are living well into adulthood - more LIVING, BREATHING PROOF!!!!!! http://www.msnbc.com/id/9189605/site/newsweek

Live to Run and Run to Live

podcast@esiason.org — Mon, 29 Aug 2005 12:43:00 -0700

Jerry Cahill interviews Cris Dopher

"I live to Run and Run to Live" States Cris Dopher, 34 Years Old, Who is Taking Cystic Fibrosis by the Throat and Taking Control of His Life.

Diagnosed at 4 years old due to Ã¢failure to thriveÃ¢?
Cris grew up in Southern California and Missouri prior to moving to NYC
Ã¢My parents did not panic when they heard the news about my diagnosis with CFÃ¢?
Cris has 2 sisters and I brother
Attended Missouri State University as an undergraduate and New York University for graduate work in Fine Arts.
Mount Sinai in New York is CrisÃ¢ CF Center
Biggest challenge: Ã¢Time spent on treatmentsÃ¢?
Ã¢Although having CF is a major wake-up callÃ¢ I try to see things in a more positive way and that opens up new doors and possibilitiesÃ¢Ã¢?
Cris believes the most important factors that keep him healthy are: Ã¢Family support, great doctors, and his motivation to researchÃ¢?
Cris completed the Flying Pig Marathon in Cincinnati, Ohio in a time of 5 hours 25 minutes.
Cris plans on running the New York City Marathon in 2006 and his goal is sub 5 hours
Ã¢You are not alone with CF and therefore I like to contribute to the CF community.

Jerry Cahill Talks with Former Co-worker Maggie Talboy about Working as a VP of Sales and Living with Cystic Fibrosis.

podcast@esiason.org — Tue, 16 Aug 2005 17:44:00 -0700

Maggie Talboy interviews Jerry Cahill - "Better Living Through Chemistry"

Ã¢My life is not about the cystic fibrosisÃ¢ itÃ¢s about living and enjoying everyday!Ã¢?
Jerry was diagnosed at age 11 after several hospitalizations for pneumonia.
Jerry comes from a very athletic family that includes 4 brothers and 1 sister.
Jerry attended Xaverian High School in Brooklyn, NY and then went on to the University of Connecticut where he competed in varsity track & field specializing in the pole vault.
CF is a challenge and a competitionÃ¢ I will beat it as best I can because life is NOT a controlled experienceÃ¢?
Jerry states: Ã¢I do not have time to sit around with IMPENDING DOOM Ã¢ go out and experience life and manage your diseaseÃ¢?
Jerry Ã¢exercises for lifeÃ¢? and believes that Ã¢exercise can slow down the progression of the diseaseÃ¢?
Jerry believes in being pro-active with his health and is very involved in NUTRITION including: I.V. vitamin drips, Ã¢lotÃ¢s of vitamins and juicingÃ¢? and of course Ã¢exerciseÃ¢?
Listed for a double lung transplant at NEW YORK PRESBYTERIAN and also seen at UNIVERSITY of NORTH CAROLINA at CHAPEL HILL Ã¢ Jerry is very happy with his TEAM of doctors.
Maggie asked Jerry what keeps him going...? Ã¢A passion for life and being involved with people, watching people grow and most important giving of yourself Ã¢ not materialistic things.
Jerry states: Ã¢I have my FULL METAL JACKET on and am ready for the transplantÃ¢!

Dr. Jamie Wells is More Than "Just a Doctor" By Giving Patients a "Positive Experience and Making Things a Little Easier..."

podcast@esiason.org — Mon, 08 Aug 2005 20:02:00 -0700

Jerry Cahill interviews Dr. Jamie Wells

Dr. Wells grew up in Philadelphia before attending YALE UNIVERSITY majoring in American Studies.
Dr. Wells attending JEFFERSON MEDICAL SCHOOL in Philadelphia where she started out specializing in brain surgery prior to focusing on
pediatrics.
Ã¢Medical school = one paragraph on cystic fibrosisÃ¢ all training comes from hands on at a CF CenterÃ¢? states Dr. Wells
As an infant with CF: Ã¢Burden on parents to understand and deal with everything all at onceÃ¢?
Dr. Wells states: Ã¢The teenage years are the most challenging as the typical teenager is not compliantÃ¢?
Ã¢Doctors and CF patients must have a PARTNERSHIPÃ¢?
Dr. Jamie Wells states: Due to the prognosis of the disease, Ã¢cystic fibrosis patients are dynamic and grow up very very quicklyÃ¢Ã¢?
Dr. Wells strongly believes: Ã¢People with CF need someone to look up to and see that there are people living at age 49Ã¢Ã¢?
Regarding Stem Cell Research: Ã¢I am an advocate of anything that is going to advance scienceÃ¢?
Dr, Wells Rx for people with CF: Ã¢Be consistent with med.Ã¢s and therapy, even when you are feeling well, and maintain an optimal nutritional state so you can fight infectionÃ¢?
Ã¢I am honored and privileged to know patients and their families with this diseaseÃ¢ people with CF really get what is about to be alive!Ã¢?

Michael Antenucci Awarded the Heidi Norris Memorial Scholarship

podcast@esiason.org — Mon, 01 Aug 2005 19:37:00 -0700

The Boomer Esiason Foundation and the Ohio Society for Respiratory Care award $1500 in memory of Heidi Norris RRT.

Heidi Norris was a Registered Respiratory Therapist who passed away in 2004 after a long hard battle with cystic fibrosis that included a double lung transplant in 1999.

Michael will be attending Youngstown State University in Ohio and majoring in tge field of Respiratory Care "Sharing the Breath of Life with Others"

Winning Championship Races on her Track Team in Allen, Nebraska and Winning the Battle with CF through Exercise

podcast@esiason.org — Fri, 15 Jul 2005 22:15:00 -0700

Jerry Cahill Interviews Erin Keitges

Erin was diagnosed with CF at 3 months due to "failure to thrive" Erin's mom, dad, older brother and sister are very supportive Growing up Erin's mom states: "Erin was treated like everyone else in the family" and not put in a glass jar" Academically Erin is ranked #1 in her class Erin is involved in high school varsity basketball, volleyball, band, choir, and has mastered Track & Field in both the 3200meters and 1600meters where she won and set school records in May 2005 "Multi-tasking!" that is the key to Erin's success and fitting a lot of living into a single day Living with CF? Erin states: "some days are harder than others but I live my life and go on..."

Coming Soon: Erin Keitges Interview

podcast@esiason.org — Fri, 15 Jul 2005 06:48:00 -0700

16 year old Erin Keitges has overcome cystic fibrosis to become one of Nebraska's top distance runners. Her inspiring story is coming soon to Jerry Cahill's Cystic Fibrosis Podcast.

UNC Adult CF Center

podcast@esiason.org — Mon, 11 Jul 2005 18:29:00 -0700

I recently had doctor appointments at the University of North Carolina Adult CF Center in Chapel Hill. I was very impressed with the precautions that the center is taking to avoid the spread of infection among CF patients. The center has a phenomenal hand out entitled: "INFECTION CONTROL". I highly recommend EVERYONE read this memo. The Boomer Esiason Foundation has placed it up on their website: www.esiason.org. Once you are on the site click on "NEWS", go to "CF RESOURCES" and click on "INFECTION CONTROL". The Adult CF Center at UNC is the most impressive and professional adult center that I have encountered in my 49 years living with CF.

Jerry Interviews Ashley White

podcast@esiason.org — Wed, 06 Jul 2005 22:16:00 -0700

Ashley White, Awaiting a Double Lung Transplant at Duke Medical Center, Looks Forward to Being Able to "Breathe Again"

Jerry Cahill interviews Ashley White

Ashley White was diagnosed with cystic fibrosis at 4 months of age.
Ashley has 4 sisters and 2 brothers, one brother also has CF.
Ashley attends home school daily.
Medication, therapy, more medication, and more therapy Ashley spends many hours a day being compliant to here routine trying to stay healthy along with nightly tube feeding.
Ashley enjoys scrap booking and spending time with her friends and family.
Listed for a double lung transplant in March 2005 after being on oxygen 24/7 and when her FEVs dropped below 24.
Ashley, along with her mom, had to face and make the big decision regarding the double lung transplant surgery.
My Mom has been the biggest influence on my life
KEEP GOING! Ashleys advice to others with CF and facing a transplant.
Without my Mom, who pushes me, I may have giving up

Jerry Interviews Lisa White

podcast@esiason.org — Fri, 01 Jul 2005 04:00:00 -0700

Lisa White's Daughter Awaits a Double Lung Transplant at Duke Medical Center and Her Faith & Family Give Her Strength

Jerry Cahill interviews Lisa White

LisaÃ¢s daughter is awaiting a double lung transplant at Duke Medical Center in Durham, North Carolina.
Lisa has the endless support from her family, friends, and faith.
Lisa stressesÃ¢? Ã¢Stay positiveÃ¢? and keep on Ã¢living lifeÃ¢? regardless of the obstacles.
Ã¢Keep researching EVERYTHING on cystic fibrosis and lung transplantsÃ¢? and most of all be Ã¢PRO-ACTIVEÃ¢? and Ã¢VIGILANTÃ¢?
Lisa states: Ã¢Ashley and I never give up, you must have the SURVIVAL INSTINCT or LIFE WILL STOP!Ã¢?

Ashley White Awaits Double Lung Transplant at Duke Medical Center

podcast@esiason.org — Sun, 26 Jun 2005 20:51:00 -0700

Stay tuned for an empowering interview with 17 year old Ashley White as she awaits a double lung transplant at Duke Medical Center and another interview with her mom, Lisa White who gives her daughter much love, strength, and support.

Amy Purdy, Social Worker at St. Vincent's CF Center in New York, is Passionate about her Work!

podcast@esiason.org — Sun, 05 Jun 2005 21:41:22 -0700

Jerry Cahill interviews Amy Purdy

Amy Purdy has been a social worker at Saint VincentÃ¢s CF Center, in New York City, for over 8 years and Ã¢loves helping peopleÃ¢?

Amy grew up in Long Island, NY
SUNY Albany undergraduate degree
Adelphi University graduate degree in Social Work
St. VincentÃ¢s has over 170 cystic fibrosis patients where Amy works full time for the center.
Amy has great relationships with her patients and knows Ã¢what there favorite flavor is in bubble gumÃ¢?
Amy deals with various issues including; medical insurance, medication compliance, educating families on CF, transplant issues, and Ã¢just being thereÃ¢? for the patientsÃ¢?.
Amy states: Ã¢Teen years are critical for medication/therapy compliance, as this sets the stage for your future healthÃ¢?.
St. VincentÃ¢s has a Ã¢phone a friendÃ¢? program for CF teens to speak to adults with CF
AmyÃ¢s goal: Ã¢Take the burden off the young adults by becoming like a personal assistantÃ¢?
AmyÃ¢s advice to families: Ã¢Use ALL the resources at your CF CenterÃ¢?

CF Sucks!

podcast@esiason.org — Wed, 01 Jun 2005 11:21:59 -0700

I just received my new T-shirt that says "CF Sucks" and it does...
I have been on iv antibiotics for over 4 weeks and still have a lot of congestion... I am at the point these medications don't work - WE NEED NEW DRUGS!!!

Kristy Denninger Enjoying Life at age 28 with Cystic Fibrosis

podcast@esiason.org — Tue, 24 May 2005 14:14:25 -0700

Kristy Denninger Enjoying Life at age 28 with Cystic Fibrosis

Jerry Cahill Interviews Kristy Denninger

Kristy Denninger is 28 years old and has a phenomenal support team of family, boyfriend, and friends.

Kristy was diagnosed with CF at 3 months do to Ã¢failure to thriveÃ¢?.
Kristy at age 14 also diagnosed with Diabetes.
Degree in Social Work from St. Thomas College in New York.
Kristy enjoys: Ã¢Family, Friends, and VacationingÃ¢?
Ã¢Relaxing on the Beach is great for my Spiritual and Physical HealthÃ¢?.
Kristy raised over $10,000 this year for CFF Ã¢Great StridesÃ¢?.
Kristy states: Ã¢Exercising on the treadmill for 20 minutes per day helps keep me healthyÃ¢?.
Kristy believes in Ã¢staying positiveÃ¢? and is empowered by the online Cystic-L Support Group.

Upcoming Interviews

podcast@esiason.org — Fri, 20 May 2005 20:06:54 -0700

Get ready for MORE!!! New and informative interviews set with vivacious, Kristy Denninger, 28 years old with CF and Amy Purdy, CF Social Worker at prestigious St. Vincent's CF Center

Jerry's Update on Benefits of Home Infusion

podcast@esiason.org — Tue, 10 May 2005 19:13:16 -0700

Laura Cianci Home Infusion Nurse

podcast@esiason.org — Mon, 09 May 2005 12:26:27 -0700

Jerry Cahill interviews Laura Cianci

Laura Cianci has been a Home Infusion Nurse for the past 16 years working with patients with acute illnesses. Home infusion therapy offers flexibility to both the patient and the nurse.

Laura has many CF patients that receive numerous antibiotics and steroids by IV.
Patients can start home infusion care as young as 18 months
Ã¢I love my patients, they are the reason why I do what I doÃ¢?
Laura states: Ã¢ItÃ¢s important to mobilize the secretions, not only through IV antibiotics but also through postural drainageÃ¢?
Laura believes CF patients need to be more pro-active in their care.
Ã¢I have learned to appreciate life more after working with my patients and seeing the fortitude they have for lifeÃ¢
Laura states: CF has an effect on the entire family

IV Antibiotic Therapy

podcast@esiason.org — Fri, 06 May 2005 07:46:00 -0700

Sorry for the delays but I have to start some iv antibiotic therapy today of Ceftaz and amikacyn - thank God for ports as I am tired of getting stuck with needles for iv's. Just to let you know I will have the new interviews up and running by next Tuesday Interviews: Laura Cianci - homecare iv infusion nurse and K - 32 year old male with CF

Upcoming interviews

podcast@esiason.org — Tue, 03 May 2005 10:43:38 -0700

I will have some new and exciting interviews coming your way within the next week. I am finalizing an interview with a 32 year old young man with CF and another chat with a CF doctor that has been involved with CF for over 50 years and has experienced a lot of transformation.

Michael Marten's Lung Transplant Interview

podcast@esiason.org — Fri, 29 Apr 2005 14:23:12 -0700

Cystic Fibrosis Podcast Intro (38:05 Minutes)

Jerry Cahill Interviews Michael Marten

About three years ago Michael Marten received a double lung transplant at Duke University. In this interview Michael discusses his life experiences both pre and post transplant with host Jerry Cahill.

Michael Marten Background Information

Age 45 -will be 46 in May
Those crazy "Mist Tents"
4 Years Old when diagnosed
Fairly normal life until graduate school (St. Johns University).
1991- Graduated Grad School
1993- Started to Repeated infections (Disability from work)
1996- First put on oxygen
1999- Put on oxygen full-time
2001- Duke University Evaluation
2002 -July, Michael Moves to North Carolina with Family
2002-August 1, Goes to hospital for transplant
3 Years Post Transplant-Still Going Strong

Importance of Family Support Mechanism

Jerry Interview Questions

Allergy Season

podcast@esiason.org — Tue, 26 Apr 2005 10:32:32 -0700

Allergy season is kicking in and I always get a lot more wheezing this time of year. I have found that doing aerosol treatments of hypertonic saline (3% and 10%) 6 times per day vs. 4 times helps keep my airways a little clearer.

Double Lung Transplant Interview

podcast@esiason.org — Mon, 25 Apr 2005 07:37:50 -0700

Stay tuned later this week for an exciting interview with a cystic fibosis individual that is the recipient of a double lung transplant. Learn first hand what one person has gone through pre and post transplant.

Aspergillus - a common fungus...

podcast@esiason.org — Thu, 21 Apr 2005 21:25:16 -0700

I'm back... I've been out of commission for a few days due to developing some growth of Aspergillus fungus in my lungs. The doctors have started me on some medications that have caused some bad reactions like blurred vision, red face, and blisters on my lips. Besides these side effects I am doing fine and "keep on truckin"

Cystic Fibrosis Podcast 4-20-2005

podcast@esiason.org — Wed, 20 Apr 2005 11:47:54 -0700

Show Notes 4-20-2005

1. DISCLAIMER:
The views expressed on the Cystic Fibrosis Podcast are those of Jerry Cahill and his guests, and not necessarily of the Boomer Esiason Foundation.

NOTHING ON THE CFPODCAST SHOULD BE CONSIDERED MEDICAL ADVICE.
SUCH ADVICE CAN ONLY BE GIVEN BY A PHYSICIAN WHO IS EXPERIENCED WITH CYSTIC FIBROSIS.
THE CONTRIBUTORS ON THIS PODCAST CANNOT BE HELD RESPONSIBLE FOR ANY DAMAGE WHICH MAY RESULT FROM USING THE INFORMATION ON THIS PODCAST WITHOUT PERMISSION OF THEIR MEDICAL DOCTOR

2. Dave Rimington Intro
Introducing Jerry Cahill and Natalie Stout

3. Intro-Jerry Cahill's Cystic Fibrosis Podcast

4. About Jerry:
Jerry and Natalie discuss Jerry's background and his involvement with the Boomer Esiason Foundation.

5. For more information on cystic fibrosis go to: www.esiason.org

6. Email Comments/Questions to podcast@esiason.org

Welcome

podcast@esiason.org — Mon, 18 Apr 2005 10:57:53 -0700

Welcome! My name is Jerry and I am 48 with cystic fibrosis and listed for a double lung transplant. My goal, while my health permits, is to share with all of you my ups & downs with CF and how I have "beaten the odds" and "living life to the fullest". Stay tuned for information as I get more familiar with the system and I welcome your comments.

Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference

podcast@esiason.org — Wed, 31 Dec 1969 15:59:59 -0800

Laurie is involved in lung, heart, liver, and kidney transplant social work.
Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC.
Ã¢Financial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and familyÃ¢? states Laurie
UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release.
Laurie recommends setting up a Ã¢fundraising teamÃ¢? ASAP once you are listed to help ease the financial burden of unexpected expenses.
LaurieÃ¢s advice:
1. Ã¢Live everyday /minute of your life and donÃ¢t count on transplant to turn your life aroundÃ¢?
2. Ã¢Prepare FinanciallyÃ¢?
3. Ã¢Exercise Ã¢ the surgery and recovery will go smootherÃ¢?

Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference

podcast@esiason.org — Wed, 31 Dec 1969 15:59:59 -0800

Laurie is involved in lung, heart, liver, and kidney transplant social work.
Cystic Fibrosis disease progression is the reason for over 50% of lung transplants at UNC.
Ã¢Financial issues as well as re-locating and waiting for the transplant are the biggest challenges for patient and familyÃ¢? states Laurie
UNC Transplant Center offers support groups to patients and family that is both educational and good forum for stress release.
Laurie recommends setting up a Ã¢fundraising teamÃ¢? ASAP once you are listed to help ease the financial burden of unexpected expenses.
LaurieÃ¢s advice:
1. Ã¢Live everyday /minute of your life and donÃ¢t count on transplant to turn your life aroundÃ¢?
2. Ã¢Prepare FinanciallyÃ¢?
3. Ã¢Exercise Ã¢ the surgery and recovery will go smootherÃ¢?